Toom-ah? What Stinkin' Toom-ah!: Maroteaux-Lamy Syndrome

The Fundraiser

I am so grateful for the GoFundMe account that our friends set up. They started it because I stopped my treatments because of lack of funds, and possibly because of my lapse, I had to do another brain surgery on March 3rd 2017 (Dan's birthday). We were grateful that our neurosurgeon was able to remove the brain tumor areas, but unfortunately the tumor started growing back within a few months. We are actively pursuing treatments, but haven't been able to find the right fit yet to stop the tumor growth. We appreciate your donations, they have made it possible to try out-of-the-box treatments, and they also give us piece of mind. Sometimes the fear can be overwhelming, but your support reminds me that I'm surrounded with love. So thank you from my heart!

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