I was told I would never live this long, that I would be lucky to see 4.5 years. Today, 14 years ago, I was diagnosed with a honker of a brain tumor, and four brain surgeries later, I'm still here.
It's an endless saga of treatments, research, medicine, fear, bloodwork, MRI's, seizures, new opinions, old drugs, new drugs. Living the brain tumor lifestyle, rather than fighting against it, has given me so much more insight into what might be possible.
I remember thinking, "As soon as I get rid of this tumor, I can go back to living a normal life." But somewhere along the way, I realized, I couldn't have both. I couldn't go back to living a life not centric to cancer. That in order to thrive, I had to completely evolve my thinking and actions.
My health is paramount, my research and ever evolving wellness is a gift that I give myself.
I don't have social media, but I will post updates here, from time to time. Thank you for the love and support.
I can't believe I'm still alive, playing here on Camp Earth. It's fucking awesome!!
You are fucking awesome ❤️💖.
ReplyDeleteIt's so good to hear an update and to also hear that you are living life to the fullest. It just goes to show that no one truly knows it all and can predict the future. Here's to 14 more! <3
ReplyDeleteThis makes me so freaking happy! Carry on! :)<3
ReplyDeleteEvery spring my students in Grief, Death and Dying class end the semester with a showing of your story :) Its a great way to end a hard year. Thanks for sharing your life with us! Here's to many more years.
ReplyDeleteInspiring story. Amazing couple.
ReplyDeleteJust brilliant ! All I can say !
ReplyDeleteWhat a freaking joy to read this post! You popped into my head today so I thought I'd pull up your blog, and TAH DAH!!! Sending you a big ol' camp mama hug to my favorite Coconuts girl!
ReplyDeleteHello Everyone…❣️
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Couldnt be happier to read this update (belatedly) - followed your story a long time. Your realisation to live concurrently with, not against, health implications/lifestyle is so wise & inspiring. Best wishes from Ireland ❤️ 🇮🇪
ReplyDeleteHi, I found you via the documentary which popped up on my Facebook page, thank you for your time in updating, I've spent my night reading the post's... Here's to many more years to come 💖🙏, you have made me hope that my husband's illness diagnosed last year which seems to be bucking the trend of what they predicted. Our life now revolves around diet, a stressless environment and positive attitude 💞. You are an inspiration. Sending love and happiness from New Zealand 💖
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