Synergising Treatments

How awesome is my friend Sara? She's THAT awesome! Remember my self promoting t-shirt from my very first race? How embarrassing. You guys are so nice to put up with me! Thank you for cheering me back to normal; for sending me ass-kicking energy. Thank you!! I have such a killer team...no pun intended. I can not wait for the big wake for Hermie, a massive party when we can dance and get goofy. There WILL be a day when the cancer is gone. He just doesn't know who he is messing with, not just me, but my rallying troops. We are a force!

In a few minutes I'm headed for my 1.5 mile run to the bus stop, then a 40 minute bus ride to get my high dose vitamin C IV. I have a new system, it's important to hone my schedule of pills, making each dose work with the other supplements or IVs so that they're working synergistically, multiplying the effectiveness. On IV days, I take 10 bioavailable curcumin & 6 piperine, then thirty minutes later, I take 18 homemade sulforaphane pills. One hour after that I am hooked up to my IV. I'm out of my high dose sprout smoothie (gotta wait until my parents grow some more), but when I have more of that, I'll add that in to the mix. The isothiocyanates work with the IV's, especially the curcumin and resveratrol. This whole protocol is intricate and takes serious scheduling - but it's incredibly exciting! 

I have to focus on increasing the efficacy of the IVs, that's why I'm working my supplements around the IV days. At this point, the IVs are $735 per week, and the chemo drink - which we're rolling into pills - cost $40 per drink. So, just with these two treatments, we're pushing $1015 per week. Fighting cancer the natural way is incredibly expensive, but it's effective. Every treatment that we're exhausting has been proven through scientific experiments. They all fight brain cancer or I wouldn't be doing it. The creme de la creme, though, in alternative treatments for brain cancer is dendritic cell therapy which costs, when completed (all three rounds), around $45,000 and lasts for about 14 months. We're meeting with my doctor on Wednesday after my last IV for the day, to get more information. They take some tissue from my tumor specimen (I called around to various departments at the UW last week and found my tumor,  a complete miracle since my surgery was over two years ago), and they create a personal vaccine. Pretty impressive stuff which has about a 50% success rate, and can be combined with all of my current treatments and supplements. 

The expense of all these supplements, IVs, and treatments are obviously mind-boggling, but if we're smart, we will only include the most effective choices and they should work together to get me healthy. I keep hearing from friends, and family, that money should not be a reason to avoid a treatment. Get the treatment and then money will come later. Danny and I figure that we will be paying off my medical bills, happily, well into our golden years. The expense of treatments used to completely freak me out, but lately I don't care as much. I need to get healthy, and once Hermie has left the building, I will write my monthly checks for payment with a big glossy smile. The money thing IS scary, let's face it. Money is important in order to afford life's necessities, and then above that, it's important in order to have luxuries like children. But, Danny and I realize that as long as we're healthy and alive, we will be happy under any circumstance, as long as we're together. 

Navigating, Always Navigating

On Friday, I was walking between doctor appointments and passed a bush of wild-ish roses. The smell was intoxicating. I find that since I don't drive, I notice so many beautiful things each day, things that I wouldn't have noticed if I was whizzing by in my car. It's a much slower pace of life, and it's a gift. 

I'm completely overwhelmed lately. I have a wonderful new primary care doctor, and a fabulous naturopath, but I'm still reeling from all of the information and reality of my new treatments. Suddenly, my cancer seems painfully undeniable. I've been galevanting around Green Lake, taking care of myself with the low doses of artemisinin and diet, and I thought that I was really fighting Herman, but compared to the other cancer patients that I'm meeting, there's so much more that I could do. That I have to do, and, all of a sudden I feel catipulted into the cancer world. Before, I realize, I had one foot in and one foot out.

There are so many treatment options, and I need to exhaust them all, all at the same time. In about an hour I'll jog to a bus stop. By jogging a couple of miles, I'll avoid having to take two more busses. I'll head to my naturopath's office to start the first high dose vitamin C IV. On Friday they had to draw blood to make sure that my body could handle all the things that they'll be injecting. I'm currently downing an intense sprout smoothie which should work synergistically with the IV treatment. It's all about timing and combining, so I'm adding various things to increase the effectiveness. It's enough to make a person crazy.

I've just finished ordering some various equipment to create our amazing chemo drink, and now I'm just trying to figure out what to do next. We have to start growing a sprout farm, literally, in our house because it takes several trays to create just one morning drink, and I'm supposed to drink it every day. And that's just the sprout drink, in the evening it's time for the chemo drink. Between those two creations, I'll be going back and fourth with the IVs (curcumin, vitamin C, resveratrol), supplements, and possibly the artemisinin (it should be synergistic according to my naturopath). Oh ya, and the fun part, I need to get a port surgically implanted into my chest for all of the IV treatments.

I'm trying to be cool, but I don't even know how to organize all of my treatments, the growing of the sprouts, the ordering of pills, the busses to treatments, the management of our household, aaaaaaaahhhhh, I'm going to spontaneously combust before I've even begun.