| I cought this gorgeose tree turning. Isn't it magic? All from one tree. Kind of life. Phases. |
The toll of caregivers while living with a partner who is living with active disease. For Dan, that's 16 years. The exhaustion. The fear. The sacrifice.
He deserves every goodness, every bit of kindness. I absolutely would not be alive if not for the him. Or he wasn't so selfless, and gentle heart. As he continues to be.
I'm not sure where I'm headed with my health, nor do I know where I'm headed with my life, but what I do know is that I will live a life of living with cancer always. MRIs every month, or every two. Maybe a fifth brain surgery, maybe more radiation again, or chemo. This will always be my life, my daily reality. I will always be managing my seizures, and doctor appoitments. It's my only option, save giving up. And I'm too stubborn to give up. I hope I never change.
I wish I was a normal woman, able to life an adult, fully but that's not my reality. A wish I was a "normie". Dear god have I tried. But when I've to live like like a normal person, eating whatever I wanted, lived like everyone else, my tumor grows so fast.
I have to be research to teach myself what to for my brain. For example, did you know that if you get into ketosis and stay in it during brain radiation your survivor is exponotal? So I did that. I try to give myself every advatage to stay here, in this happy little vessel of my body so my soul can stay on earth. I love it here!
PS my language issues are mostly from the hematoma that happened a week before radiation. I had several Grand Mal seizures, back to back to back, we couldnt stop them so I have had some icu stays peppered both jiust before, then while in treatment.
Anyway, thank god I had already done so much research so I had a plan to make my radiation as effective as possible. I'm definitely scared, sad, and I get lonely, but as my written words improve maybe I will be able to get back to my MSW to do the work I'm meant to do - help other cancer patients as they get diagnosis or recurrence.
As always, I appreciate that you read this. It's a relief, and healing. And I think the more I try with my language I will improve so much better. So I guess you are my language therapy. Thank you! :)
Oh Jess!! Thank you for continuing to share, continuing to fight and live and love with all your heart!! You are such and incredible woman. I wish that you could live out every dream your heart desired. I know that is not your story currently and I am so thankful that you are so transparent, loving and comforting to all who love and care about you!! All my love to you and Dan always!!!
ReplyDeleteStay strong. Keep up the fight.
ReplyDeleteI’ve followed you for years and you are such a beautiful person! You inspire me daily! 💖
ReplyDeleteI love that we can help you, even in just a small way by reading your blogs. You are a beam of light to many others and I hope you feel some of that love and light coming back to you.
ReplyDeleteYou are simply and uniquely amazing.
ReplyDeleteHiii Jess. I watched your documentary “‘my last days” on Youtube years ago and I decided to revisit your video to see if the comments could inform us viewers what youve been up to. I know my message doesn’t seem much but I am sorry for what you are going through. I know you probably receive a lot of sympathies and sorries daily and you might be sick of it but I do hope things do turn up for you. I just want to let you know your story and everybody else’s documentary inspired me to live my life and to not take it for granted
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