RESOURCES

These resources are in no particular order.

BRAIN TUMOR WEBSITES


Brain tumor patients using the cocktail approach to cure cancer
The Brain Tumor Cocktails blog is the closest we can get to "open source."
Learn from others, start, or join the dialog by educating yourself.

 PubMed National Library of Medicine
Use this website to search key words to find research papers.
For example: Glioma + Radiation.  Or even: Glioma + Cannabinoids.
The options are practically endless!
"This website has been built by patients and their relatives to encourage and facilitate patient orientated oncological research, bringing together every stakeholder in the cancer paradigm for the first time: patients, doctors, researchers, regulators, and funding partners." - Anti Cancer Alliance website

 Astrocytoma Options
This site is about options, mostly based on reading of the peer-reviewed scientific literature,
and some correspondence with experts working in the field.


A major foundation for the betterment of brain tumor patients and caregivers
The Musella Foundation For Brain Tumor Research & Information, Inc is a 501(C)3 nonprofit public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research. - See more at: https://virtualtrials.com/index.cfm#sthash.uYFMsrU9.dpuf

A resource for brain tumor, or brain cancer terminology
This page is a crash course in brain tumor terminology. It gets updated quite regularly.
It's one of the many resources off of the Musella Foundation website.


BOOKS


"In 1995, Ben Williams was diagnosed with a brain tumor the size of a large orange and given eighteen months to live. Rather than rely solely on the advice of his physicians, Williams sought out cutting-edge treatments, identified promising alternative therapies, used his statistical expertise to interpret clinical trial results, and ultimately created his own 'drug cocktail' based on the best scientific research available. Williams maintains that the practices of the FDA and the medical establishment sometimes result in potentially helpful treatments being withheld from terminally ill cancer patients." - Google Review
 Radical Remission: The Nine Key Factors That Can Make a Real Difference
"In her New York Times bestseller, Radical Remission: Surviving Cancer Against All Odds, Dr. Kelly A. Turner, founder of the Radical Remission Project, uncovers nine factors that can lead to a spontaneous remission from cancer—even after conventional medicine has failed." - iTunes Preview

BRAIN TUMOR VIDEOS


"This documentary presents compelling evidence, from doctors, regulators, and other patients, that raise concern over the validity and ethical grounding of oncology research, and the resulting limitations to clinical practice. Is it possible that as a society we could make dramatic progress against cancer if we reconsidered our strategy, as opposed to blindly following a system that has failed to deliver meaningful results in most deadly cancers for over four decades? With such a delicate and complex subject, we have tried to maintain objectivity whilst asking questions which are long over due in the public domain." - Surviving Terminal Cancer website


BRAIN TUMOR SOCIAL MEDIA


Twitter Conversation: Brain Tumor Social Media
TWITTER: #BTSM TWEET CHAT
tchat.io/rooms/btsm
1st Sundays of every month at 6pm PT/9pm ET 

Brain Tumor Social Media Chat on Twitter 


7 comments:

  1. Hippocrates Health Institute in West Palm Beach, Florida Fantastic for healing mind, body, and spirit. I attended their three week program three years ago for breast cancer. I highly recommend it for any and all dis-eases.

    Dr. Schulze's 20 Powerful Steps to a Healthier LIFE. Dr. Richard Schulze is one of the foremost authorities on Natural Healing and Herbal Medicine in the world.

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    1. Thank you for the tips! Very appreciated. :)

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  2. Jessica. I am a friend of Bolivia Bob, Robert Stenehjem from Phuket. He mentioned your name and I have been following your blog from time to time. I wanted to pass on to you my recent experience with coconut oil and the effects on the brain. Rather than me writing about it, I am copying and pasting the following from Mary T Newport, M.D., The Story of Ketones. Her focus has been on Alzheimer's and coconut oil but I have read several testimonials and comments from people with brain tumors. I pass this on in case you have not run across it. I did not see it on your list of alternative treatments. Cheers Patrick Holland, Bob knows my email.

    Glioblastoma and Ketogenic Diet

    "Sunny Lee" recently posted a comment under my previous post. His wife has glioblastoma and I hope he will see this.
    There are at least two articles by Dr. Thomas Seyfried and associates on use of the ketogenic diet and caloric restriction to treat glioblastoma. This information was presented at the "Ketogenic Diet for Epilepsy and other Neurologic Disorders" conference we attended in Scotland October 2010. They have found that this type of diet shrinks glioblastoma tumors by as much as 80% in lab animals and they have published a case study of a woman whose tumor virtually disappeared after six weeks on this diet. When she reverted back to a higher carbohydrate diet the tumor returned.
    The concept here is that many cancerous tumors can only use glucose as a fuel and cannot use ketones. On a strict ketogenic diet, carbohydrate as well as protein (which can be converted to glucose) are minimized and the diet is high in fat, usually 80% or more of calories as fat. Using coconut oil and/or MCT oil in this type of diet helps maintain constant ketone levels. The brain and other organs can continue to thrive using ketones as fuel, whereas the tumor will shrink due to low availability of glucose. Dr. Seyfried believes radiation may not even be necessary thereby sparing the horrendous side effects of this treatment. In many cases, after the tumor is reduced in size, it could be more readily removed surgically. This could significantly lengthen the person's life.
    Dr. Seyfried believes that man other types of cancers would respond to ketogenic diet an dmroe so if there is also caloric restriction.
    For anyone who needs help with the ketogenic diet there are two websites to look at: In the USA www.charliefoundation.org and in the UK www.matthewsfriends.org. Both websites were created by parents of children with severe drug resistant epilepsy that responded remarkably to the ketogenic diet and have dieticians available to help.

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    1. Thank you for the information! Absolutely wonderful!!

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  3. Great news that Hermie's friends are shrinking!

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  4. http://www.burzynskiclinic.com/ - this guy has completely cured brain tumors

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    1. I actually spoke with Dr Burzynski, after sending all of my medical records. He reviewed my pathology and entire case on 8/18/16, and he said my type of tumor is rare, and not one he usually treats. That he doesn't have any data on the success rates with my type of diagnosis, and doesn't believe I would be a good candidate for his treatment. It was a very big bummer.

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