Tuesday, April 13, 2010

Urgent Jess Update

The email I sent to friends and family after the results of my scan:

Friends & Family,

Just wanted to send a quick note to let you know that I've had some extremely unexpected news. After an insanely intense debilitating headache that occurred last Friday while snowshoeing with Danny (and a couple of re-occurring headaches on Saturday and Sunday), I scheduled an appointment to meet with my doctor yesterday morning (Monday).

I told her that I had such a bad headache that I couldn't walk or see for about 90 seconds, and that the left side of my head, and lower back of my head, felt like they had a lot of pressure, and continued to have a pretty bad aching sensation.

I pressured her to sneak me in for an MRI scan immediately, but there were some hoops regarding my insurance so we planned a CT for today.

This morning I went in for my CT scan, at which time they said that I would instead be receiving an MRI (at which point I thought, "ooooh, UPGRADE!!"). Once in the room for the MRI they told me that I would not only be having an MRI but also an injection to see my brain even better (at which point I thought, "Cool! Double upgrade!!!").

After the procedure the radiologist looked at me funny and asked when my followup exam was (and I told her Friday), she told me that they would have my results shortly. I only got halfway home on my drive before I had a call from my doctor who told me that she had been on the horn with the neurosurgeon Dr Higgens and that I have a massive brain tumor and an AVM. I asked her if I was going to die, and her response, "We hope not."

She wanted me to turn around and head back to the hospital because they were holding a position at the CT dept for an Angiogram as soon as I could get in. Of course, I then called Danny sobbing and told him I couldn't talk but that I had a brain tumor. Then, I had my parents come get me from my car - I couldn't drive because I was sobbing and shaking so badly.

I've since done the angiogram and I just took my first pill to take care of the brain swelling. 

I have an apt with the neurosurgeon tomorrow where he will go over my diagnosis and my options. It all depends on the AVM and the Tumor (I'm capitalizing because I fell like it deserves that kind of punctuation). The two issues are unrelated, but make it difficult for surgery. I have no idea what type of tumor it is. We have no idea what I'm actually dealing with.

Anyway, at this point all I know is that I have a large Tumor in my lateral parietal region and an AVM.

I will be in and out of the hospital in the following days, and it looks like the first brain surgery is scheduled for Thursday morning at 8:00 am.

In the meantime, I love you all - all of my friends and family, and if you pray or send positive energy, please do what you do and think of me because I'll feel all of your positive thoughts. I'm not sure how things will continue from here, and I probably won't be on the phone except for doctors or things of that nature - I've already been on the phone today with three different doctors, two radiologists, and multiple nurses regarding this issue. They are awesome, awesome people, and they're really moving this right along.

Sorry if this email is ridiculously long - but you all know that I'm absurdly long winded.

Please don't be offended if I don't get to your call/text/email - it's definitely not personal. All of my love to everyone - I have been so insanely fortunate in my life - and I can't wait to conquer this - and for the record, I am cashing in regarding this email...any grammatical error of any sort or any particular aspect of my writing that doesn't sound eloquent and mind blowingly witty, is because I have a brain tumor.


1 comment:

  1. My name is Bo. I am Kaitlin"s friend. I don't even know you but I am touched by your life after reading your email and will be praying for you. I am so impressed by your courage and I love that you have a sense of humor in the face of a serious surgery. Just remember that the power behing you is always far greater than the task before you. Certainly that power will include my anonymous support. kisses and hugs, BO


Related Posts Plugin for WordPress, Blogger...
Back to Top