Thursday, September 12, 2013

Scheduling Dopa Pet

Lately my brain has been foggy, for the past few weeks. I've been fighting it, but it's getting worse. Word finding, exhaustion, sentence completion, loss of control of my right hand and dragging of my right foot. I'm constantly in vertigo, and often I will will just fall asleep out of nowhere. It's scary. Because of this turn of advents, we are trying to get my Dopa Pet amd MRI scans scheduled sooner. I'll need to fly down to LA and I don't know how to do it all, but I'm sure my family can help me. I'm having problems reading, and taking care of things. It's sad. I hope that this isn't the beginning of a downward spiral. I haven't had these kinds of problem since I was first out of the surgeries. What's happening to me? My mind feels like it's melting, and my body feels like my right side is weighted down. I lay in bed every day, no more walks or running. I'm not sick though, feel like that would be better though. I feel crazy. And it's sad that Dan is noticing the deficits too. I've been having a nice long run of life, but I'm not ready to give up. But how will I fight when I can't research? When things don't make sense. I'm so confused. And scared. And very tired. The worst is noticing my mind evaporating. Please excuse my lack of emails/phone calls. I'm just too pooped these days.

13 comments:

  1. Hi Jess,
    Maybe its just the current meds you're on? Medication side effects can be powerful - that would be a reversible cause too! Hang in there - this disease has lots of ups and downs.

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  2. Hang in there! Remember your troops are out there holding and waving their "Hope for Jess" flags!!!

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  3. I'm so sorry. Sending so much love your way! Hugs, Mel

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  4. You were doing so well. Must be a reaction to something. I have very good vibes about you. Seriously.

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  5. Lord God I ask you to touch Jessica's body, mind, and soul, Father bless her with the touch of your hand. Lord guide her to the things that help and not harm, direct her path, fill her with your strength, hope, and love. Show her how much her life matters, and how many care for her. Bless her with finding you even though so many things are in the way, shine your love as a bright light that she may see and feel. Thank you Lord, in your precious name I pray and ask all reading this to agree in prayer, Amen

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  6. Keep fighting Jess! Thinking of you and sending love xoxo Rachel

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  7. Sending love and light. Makes me so sad to hear your fear and sadness. I am keeping you in my heart and continue to think positive and healing thoughts for you. I recently saw you and meant to tell you how beautiful and radiant you are and how much your spirit shines. I pray for your stength to restore you and keep love in my heart for you.

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  8. Jessica lots of love to you. You are an amazing women it was great talking to you a couple weeks ago. I pray that hat you feel better with all my heart. Love to you always.

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  9. I love you Jess. You are such a brave and beautiful woman. Let me know if you come to LA and I can do anything to help. Anything at all. love you. -Marina

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  10. Hi Jessie... it's Smithy. Mary and I will be praying extra hard that you will be feeling better immediately. You have been so strong and positive. Today is Terese's birthday. I'm sure you are in her daily thoughts and prayers too. God bless you and Danny. Pray for me too. love and peace, Smithy

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  11. Hey Jess. I'm with Marina on this one. If you need a ride from the airport, a place to crash (or really anything down in LA) feel free to give me a shout. I'm home until the 16th of October.

    Jeff Diffner
    206-898-7404

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  12. I'm thinking of you Jess and hoping that you're doing better. Did you see the study done in Sweden on the CMV virus? Apparently, many/most brain tumors have the virus and in the study people who were treated with the drug Valcyte for at least 6 months lived 3-4 times longer than average GBM patients. The drug is expensive but it's $14 a day here in India. Let me know if you'd like more info.

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    Replies
    1. I responded to your other post, how is the treatment coming? Have you started?

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