Sunday, October 13, 2013

Degrees of Separation

Sunday morning homework completed...

So here's a cool story. Absolutely random. I received an email Friday night from one of my closest friends. The subject line was, "Amazing" and the body of the email contained only a link. Confused, pretty sure it had to be pictures of kittens or something random that would make me smile, I clicked.

As I was reading the blog post (some time into it), I realized they were talking about me. Woah! I'm not used to reading about myself, I'm used to doing the writing. I was so humbled, and blown away. Robyn, the author, is such an engaging writer. The whole story, especially when reading it from her perspective, is truly amazing, just like Libbey said.

I remember the first time I experienced how small the world truly is. It was in the summer of 1997; I was an exchange student in Costa Rica. My friend Talia (another exchange student from Irvine, CA), and I were walking down the steps at the San Jose mall when we crossed a woman coming up the steps. Talia and the woman locked eyes and got very excited, they started laughing and giggling, looking around in disbelief. It turned out she was the mother of a Talia's schoolmate. Unbelievable. The world is so small at times, and yet at others so incredibly immense.

People come in and out of our lives and we have the ability to learn so much from each interaction, each situation. I love the fact that the brain tumor world is very small, but beyond even our group there is a great divide. There are those who (for whatever the reason) are solely following standard of care, and there are those who are searching outside the box for the cure that we've been told doesn't exist. Living outside the box is definitely exhausting, it's a mighty journey, a treasure hunt. The reward is so great, though, that once you start looking you can't stop yourself from making it your life's work. It consumes you.

I love my other treasure hunters, and I appreciate them so very much! I learn from you, I feel connected to you, I want you to win, I want us to conquer, and make it to the mountain top. There is no way I could manage this ongoing battle without all of the help. You brain tumor/cancer fighters are very smart, very hard working, and all along you've been having fingers, tools, devices, chemicals, and radiation in your grey matter. You impresses me to no end. Unlike other cancers/issues, our troubles are in our brains. Kinda important territory when trying to read/research/comprehend/remember.

On another note, found out today I'm losing my health insurance (Costco's small business health insurance). Apparently, the whole system I'm in is becoming defunct because of Obamacare. I thought we would be able to keep our health insurance if we liked it? What the heck?! It looks like I'll be moved over to Medicare. Hopefully I get to keep Dr Liau, she really has been my saving grace.


  1. Unfortunately, Obamacare is going to affect is in ways we don't even know. I hope it is not detrimental to our fight. Under government-control type of plans, it won't be as easy to go out of state or region to seek the best care available. In a single payer system, going to Duke Brain Tumor Center could be close to impossible or perhaps not permitted for me. Ahhhh! I hope that our lives are not put at risk due to these changes. Very scary, indeed. Too bad congress and the rest of the politicians in DC get to keep their insurance and don't have to be part of the mess they created with the Health Care Act. Keep fighting... So happy to "hear" you sounding positive and excited again! Jess

  2. I am just awestruck by The Robyn's Nest post!! So amazing!! So completely incredible that it gives me goosebumps too! I like to believe Robyn's analysis is absolutely true! Somehow, someway, you two were meant to meet and be able to walk your path in friendship, compassion and empathy with the incredible knowledge, intuition and endurance that you both seem to posses! What an amazing story! Thank you for sharing Jessica, Libby and Robyn! How our lives intertwine always captivates me! My love to you and your amazing new friend Jessica!!

  3. Well hello, Gorgeous! We are all thrilled to bring you into the circle! Katie had been on the hunt for an optimistic tumor-fighting angel for quite some time! xxox Robyn

  4. What a beautiful post...I love the concept of "Divine Friendervention"! So sorry to hear about your healthcare challenge - may it be changed/resolved very quickly. You are an inspiration!

  5. this blog really is inspirational and can fill us with so much hope. i've only been diagnosed for 3 weeks but i keep coming back to this site for information and research and hope.

  6. This was so cool! Came by to see how you were doing and found this. I'm so amazed at how God works everything out sometimes. Praying for you in the uncertainty of the new test.

  7. Hi Jessica's friends, If you want to read more about me and follow our similar journey's you can go to :



Related Posts Plugin for WordPress, Blogger...
Back to Top