Saturday, August 3, 2013

RATS! Scar Tissue vs Tumor

Horrible news. Yesterday morning I received a phone call from UCLA. To start at the beginning, the MRI report I've read was from UW, and I've been waiting for UCLA's report. Flash back to yesterday, I received a call from UCLA's oncology department wanting me to come in for an appointment on August 12th. And the woman didn't know why. she had zero information. I was so confused, and panicked. Usually I deal directly with Dr L's office, but this time it was the chemotherapy sector. YIKES. My heart dropped. I asked if it was about my MRI results and the kind woman had no idea. So I asked for someone to call me with more information. Then Dan emailed Dr L, and I called her office. The waiting period was incredibly painful.

A while later, we received a response from Dr L, and a phone call (within moments of each other), explaining everything. Apparently, there is an area on my MRI of hyper intense T2 signal that has slowing been growing. The doctors can't be sure if it is scar tissue or tumor tissue, so they want me to fly down to LA and get a dopa pet scan along with a regular MRI. If it's tumor they want me to start some sort of chemotherapy. 

After talking with both doctors, we all agreed that this is not an urgent matter as I'm not presenting with symptoms. So, Dan and I decided to wait and schedule both scans in October at my regularly designated time for scans. If I have any new symptoms I am supposed to immediately schedule the scans and fly down to LA. 

I'm very saddened, and feel nauseous about the turn of events, however I'm relieved and grateful that UCLA is so thorough and can provide better care than any hospital in my area. There's only a few hospitals in the country that do the dopa pet, and I'm reminded of the fact that it's paramount to go to the best, to travel for doctors, to not stay stuck because it's convenient to use the neighborhood or regional hospital. Your life literally depends on it. Doctors are not equal. Hospitals are not equal. Treatments are not equal. 

Although I felt scared by the news from UCLA, and yet relieved that it isn't definite tumor growth, Dan and I made a last minute decision to join a indoor bocce ball birthday, and I'm so glad we did! There's nothing better to put a smile on our faces than friends, and laughter! It was fantastic! Laura's probably going to kill me for posting this pic, but I'll deal with her sassy wrath later. :) These girls are so fun, and kind, and real. I just feel like life is constantly extraordinary. I don't know why I got so lucky, but I'm going to soak up every minute.

1 comment:

  1. Hey girl chin up - take this news in your stride and remain positive - this is not going to get you down! Treat it as an annoyance that your going to forget about till October! Bloody tumours they get in the way of living!

    Big hugs



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