Tuesday, January 15, 2013

5th Germany Update

Just woke from a bad nightmare. I have such vivid dreams. Yesterday, when I arrived at my appointment, the nurse took one look at me and called Dr Germany. I tried to explain that I looked awful because I was reading a sad book (true story) and it made me cry (also true), but she wasn't having it and postponed my immunotherapy for later this morning.

I'm feeling much better after having a break. Now I just have the immunotherapy this morning at 9:30 am, then tomorrow I have the immunotherapy primed with my dendritic cells. Then I'm done. Until my reoccurring New York appointments, that is. I had more hyperthermia appointments scheduled, but I'm canceling them, obviously that treatment does not work well with my body. I had been so excited, but oh well.

Here's a photo of green and I last night when we wondered off for her birthday dinner. We were literally laughed at in our bright coral and yellow coats (by our bell boy) because 99.9% of Duderstadters wear black, brown, or gray coats - either puffy or real fur trench coats. Apparently we did not get the memo.


  1. Speed bump! We all hit them sometime, somewhere. Good news is we keep going. You are a trooper, and I know you could probably fly if someone asked you nicely. You have come so far, and have not let anything hold you back. So proud of you, and happy for you. Keep up the good work, and remember you are so loved. God bless you sweet girl!!!

  2. So glad you're feeling better. Not every treatment works for everyone - but the main thing is you were able to try the hyperthermia and make that determination. You are a rock star - and tough as all get out. So proud of you. And still so thrilled you were able to do the Newcastle - with dendritic cells! Enjoy the rest of your trip and get home safely.

    Lots of love from NYC
    John and Steph


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