Nasal Down Sublingual To Go

Can you see....?

There is no chlorotoxin left!!! My nasal applications are completed. No more every four hour applications. No more hanging over park benches, and airplane seats with my head at the floor and feet on the ceiling. The things I have done to keep on this crazy schedule for the past few years has been wild. Everything has centered around the applications, all of my sleep, my food and drink, all of it.

I still have the oral applications for a few more days, but when that's over Dan and I will celebrate and high five, and maybe do a special dance in the living room, or maybe on the lawn. I will sleep in for once (maybe twice) and nap whenever I want. That's the most joyous part of this new chapter. I will enter a stage of full restfulness. And it is so needed. I'm never fully rested, and it effects the seizure activity. Maybe this is going to be the end of my seizures. What about that! Why not, really? It could be the saving grace. I'm just exhausted from tracking all of this stuff. A break. Wow. A break to celebrate and all I want is to be able to sleep. I may sleep for four days consecutively when the mouth venom ends next week. Glorious. I am counting down the days. I'm coming back into the land of the living, and it has never felt so perfect.

I never thought I would get back to being excited for my tens and tens of pills multiple times a day. Aaaaah the good life of pills upon pills upon pills. 

I don't know what I'm doing, but I hope I'm able to do it well. That this cocktail of approaches bode well for my body. That I may heal.

It's a new era, and I will evolve with the times.

I'm still soaking it up. 

To The Moon!

Do you guys remember that the year I was diagnosed (2010) I was training for an Olympic Triathlon? Well, obviously that crumbled, but this winter I decided to use my good health to take a tour of not what could have been - but is about to be. I don't know if that makes sense, but what I'm trying to say is that I'm snatching up opportunities to challenge myself; to get back to living the life I was born to enjoy. That includes challenging myself physically like the mad runner that I always was.

One thing that I've learned about myself is that competing, although awesome, isn't as fun unless you don't take yourself too seriously. Wow, how is it that I can speak in double negatives, yet I can never, for the life of me, understand it when others do. (Or maybe that wasn't a double negative. The mystery is on). I digress. So, a year or so ago, someone stole my bike, the bike we would use for speed and comfort. But with friends like ours, it is of no surprise that my buddy Laura lent me her 6 speed beach cruiser to galavant around the hoods of Seattle. She's rusty, but trusty, and when I hit the never expecting bump from our evergreen roots, the bell dings on its' own. I am a sight to see, I'm sure, if not for a lesson in humility.

Next month, I am coming up on the 1500 meter swim (haven't swam since dunking myself in the sound on Saturday and it was a real in and out moment), the 25 mile bike ride (just imagine the cacophony of dings as I race around the course), and the final 10k which is about 10 times longer than I've been running. Not to mention this race is at Lake Chelan where it will easily be 90 degrees by early morning. Dan has gallantly decided to join me, although I don't know how seriously he is planning on taking it. He may leave me in a swirl of bubbles and dust.

From This:

To this:

My Trusty Medicine in The Basket At All Times

On Saturday, Dan trained me down to the farmers market, and back home. Everyone needs a good coach. No joke, my balance is still a bit off from all the brain surgeries, but I'm confident. Dan even made a little video, sneaker that he is, and I can't stop laughing about it. My goal to finish the Olympic Triathlon is to complete in under 3.5 hours. I'm being modest though, I really think I'm going to easily make the three hour mark. (I hope you can literally hear me laughing as I wrote that.) Set the goals high right!? To the moon!

I may not be living the way I thought I would, but good God, I'm having some freaking fun every single day. And I realize that life is more than just having fun, but sometimes it's really exactly what you need.

If you'll be in the Chelan area the race is July 18th, a Saturday. I assume it will be a zoo, but if you're around you'll know me by my uncontrollable dinging, and ahead of its' time aerodynamic helmet. (Sarcasm.)