Jul 17, 2011

Cutting Back

Thank you so much for all of the support. I appreciate all of the emails, the texts, the comments on the blog, and all of the love in the various forms.  There is no way I could be holding up as well as I am, if not for all of the love from all of you. So thank you.

I'm completely exhausted, probably due to the seizure, the ER, the MRI, the oncologist's office, and the reality of the changes in my health.

Even though I'm aware of my brain tumor, over the past year, I had tried so hard to get back to a normal life. A life full of family, friends, work, volunteering, gardening, running, a life without limits. Now, I'm cutting back my work to 2 hours a day, in fact, I have to cut back on everything my life. I'm either going to collapse in a fit of seizures or I can sleep more, remove most of my social calendar, walk instead of run, and change my hobbies to reading and painting. Things that are not stressful. I'm scared to push myself too hard. I'm very light headed these days, and I'm terrified of having another seizure. It was horrible. I feel like I must have looked like I was possessed or something. I'm scared that I don't know what exactly triggered it. I'm scared that I don't exactly know how to prevent it. I'm scared to hurt myself or others.

This last MRI was eye opening too. I honestly thought I would have another year or two before I had tumor regrowth. I'm young. I'm only 30 and I've always been incredibly healthy. For crying out loud, I earned the presidential fitness test in high school (sounds fancy but it wasn't really a big deal). The tumor in my brain is happily growing. What an idiot. The stupid thing doesn't realize that if I die, it dies with me. Unfortunately, you can't talk sense to a brain tumor.

Time for bed. The new seizure medicine which I take each morning and night makes me very sleepy. I'm pretty drained, definitely confused, and still reeling from the events of the past week. I don't like the reality of this brain tumor. I can deal with the theory of it, but the reality totally sucks.

Jul 14, 2011

MRI & Seizure Changes

Here we go, I borrowed danny's fancy phone, and i'm punching keys like a two fingered sloth.
The mri shows some new growth. They're not going to radiate right away though.

Due to the seizure, my license has been revoked. I can not drive for six months. I have to show zero seizures for six months. If i have one, the timeline starts over.

I will be on antiseizure medicine for the rest of my life.

No swimming either. I have to get used to having all kinds of limitations.

I feel bad. This past weekend danny and i signed our marraige certificate just in time for my body to start falling apart. Now i wont even be able to go visit him.

Things can sure change quickly.

Maybe i need a Rascal, you know those little wheelchairs? I don't know how else im going to survive.