Friday, October 7, 2016

Introduction to My YouTube Vlog

I'm getting lazy in my old age, and resorting to video blogs to keep in touch.

Okay, I was just cracking a joke, but truth is, I'm having a harder and harder time expressing myself with written words. I can't even think straight these days. I'm truly bone tired, and that's why I barely write anymore.

Please note: My YouTube channel will have all the videos, but the BLOG will have all the various posts: video, written, guest, etc.

19 comments:

  1. Nice to see and hear you! Enjoy your thanksgiving and let's talk soon :)

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    1. Can you tell I'm Canadian? I forgot it's not Thanksgiving yet south of the border.

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    2. I have been following you for years and appreciate communication from you in any form. Please continue to let us know how you are doing and when you are having your surgery. Thinking of you always!

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    3. Ha! Nice Stephen! And it is so weird to hear "south of the border" and not think of Mexico (and with it, chips, salsa, and all the other amazing food). Great talking to day - although short by our standards. Travel safe tomorrow!

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    4. And thank you Anonymous. I appreciate you caring about what's going on with us. It makes me feel very special! I will definitely continue to keep you updated. :) xo

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  2. "So Cal" PattiOctober 9, 2016 at 5:23 PM

    OH Jess, I just love the Vlog because it gives us a chance to see you and hear your sweet voice! I've loved following all 6 years of the Blog although I haven't been commenting as much since I had my slight stroke last year! I was able to see you on the TV Show and I just LOVED IT!!! Cried through the whole thing! Just loved your Wedding Surprise for Dan, seeing all of your family and friends, and just seeing Friday Harbor ~ my favorite place when I was a little girl and my Grandpa lived there! I Love You and have done so since the Blog began! Keep strong Young Lady and I'll try to do the same!!! Much Love, "So Cal" Patti

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    1. SO CAL!! Yep, we're little diesel engines that CAN! Hope you're recovering from that stroke okay. And I'm so glad you liked the show! And for the record, both Dan and I cried through the whole thing too. I love the idea of you and your grandpa on the island. I bet that was a sight! Sending you lots of love!! xoxox

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  3. Keep strong! I started following you this summer after my husband was diagnosed with the same type of tumor same location as yours. We are from Vladivostok, Russia, but currently live in San Jose, CA. He is software engineer. Our NO is Dr.Taylor, UCSF. My husband Alex's enrolled in Everolimus clinical trial. You inspire me to not give up and stay strong. Will definatelly follow your vlog. Anna

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    1. Oh wow! Horrible about the diagnosis, but you're at a wonderful center! Great facility, brilliant doctors, wonderful clinical trials. But, of course, you already know that. ;-)

      I'm so glad that you found me, and that you are inspired - it's a huge compliment! If there's ever anything I can do, please let me know! Have you seen the website http://btcocktails.blogspot.com ? You might not need it now, and hopefully never will, but it's an amazing resource.

      Take care, I'll be thinking of you guys!

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  4. Bless you Jess and Dan. I think this is a great venue and its nice to see you and hear your sweet voice. You do what ever is easier for you. I'm just grateful that you keep us informed.
    Corkie

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    1. Thank you Corkie! You are so sweet to me! And I really appreciate it. I'm blown away by response. I'm so pleased that the vlog seems like a win-win for everyone, not just me. ;-) Yay!!

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  5. Sorry to pester you jessica. I asked on your last post but i dont think you had time to reply. You mentioned taking sugar and some medicine when you feel a seizure coming on. Is that keppra?

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    1. Dominique, I'm sorry for the delay - and truthfully, I often need "pestering" so that I don't forget stuff. The medicine that I was talking about is lorazepam. It slows down the central nervous system, which includes the electrical currents in my brain. I chew it up and shove it under my tongue. It takes effect within minutes. I've heard of other patients that use valium suppositories with immediate success. I just don't think it would work for me since I can even unbutton my pants during an aura/seizure. Hope that helps!

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    2. Thank you for replying. But isnt that for a grand mal?

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    3. Dominique, are you referring the lorazepam or the valium suppositories? Or both?

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    4. To both. Or either. When do you take lorazepam? Even during a focal seizure?

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    5. Yes, I get an aura for my seizures (which are 90% focal) - I mainly have Jacksonian seizures, and I take a lorazepam when I feel them coming on. I don't know if the valium suppositories are mainly for grand mal, or all seizures, as I haven't taken one myself. The lorazepam definitely helps slow and stop my seizures. I was on Keppra for a period of time, but it made me excessively angry, and depressed, very quickly suicidal. I couldn't live that way, so I tried two others and they did the same thing. I'm not on anti-epileptics currently, however I don't drive either. And since I have auras I feel okay taking that risk. It could change at any time and I may try the drugs again, or others. Are you taking anti-epileptics? If so, is it working for you?

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  6. I actually wrote on behalf of my mum. She is on both keppra and vimpat. Thanks jessica. I hope UCLA recommends surgery. My mum's anaplastic astrocytoma is inoperable.

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    1. I'm sorry to hear that, Dominique. I'll keep your mom in my thoughts, and prayers!

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