Monday, October 24, 2016

UCLA Tumor Board Results

Dang it if brain tumor life isn't confusing. At least in my world! I can't be the only one who has these types of yoyo results. I mean, it's better to have differing results than a truly horrible, obvious situation. The ups and downs, though are insane. 



If you don't want to watch the whole video (3 min 44 sec), the short is: tumor is growing, albeit slowly. (Think millimeters.) I believe the two treatments I added in the past two months, are helping - who knows, maybe the tumor had grown more in the interim, and now they're even shrinking it? Who knows! I rule out nothing.

My neurosurgeon at UCLA offered a brain surgery to remove whatever she can, or she said she is "comfortable" waiting 2-3 months for another stealth (pre-op) MRI. I opted for the latter, and agreed that if I had furthering symptoms, I would move up the scan.

Some people might think I'm crazy to push-off brain surgery, since I have a growing tumor in my brain, but there are inherent risks involved. Remember when I had to learn how to walk, talk, read - learn the alphabet again?! I do. We will never know for sure if the decisions that we make are the best ones, but a decision is what we have before us. For now, we try to do the least invasive approach. If that isn't enough, we will evolve as we always have.

It's confusing because the symptoms of my seizures are the same symptoms that tumor growth would cause. The main take away right now is that it's important for me to stay the course on exactly what I'm doing treatment-wise, and perhaps even add a few non-toxic, whole body health boosting things. And I really need to lower my stress levels. They directly cause extra seizures, and that makes diagnosing possible tumor growth, very difficult.

With all that being said, I should go to bed. I have a big day planned with a bunch of friends tomorrow. We're doing a nature hike in an old growth forest. I'm so excited! I'll be sure to hug some trees for all of ya. ;-)

14 comments:

  1. Yay! Congrats on the good news and congrats on living life to the fullest. You are inspiring!

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  2. Hmmm, what to do to relieve stress in Jess. Hey, it rhymes. I'll put my thinking cap on and come up with something. That aside, I love the fact that you and Dan can incorporate good humor in all this. That's a strees reliever right there. I'm happy to hear the news and the path ahead is getting better. 😘

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  3. 💙🙏💙 Amen to you and Dan 💙 Thank you again for sharing this awesome news. Praying for tumor shrinkage and NO seizures 💙 Sooooo happy Dr. Liau and her crew are working on a plan for you. 💙🙏💙 I go down for the clinical trial on the 2nd for my injection. I will ask them to please take care of our friend 💙

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    Replies
    1. Thanks Laine! I hope your injection went well! xoxo

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  4. Thank you for sharing your wonderful news. Enjoy your hike today. Rain is holding off-so far :-) You & Dan are amazing & beautiful !!!
    Blessings to you, Dan & your family

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    Replies
    1. Thank you Elizabeth! It ended up being rainy, but it was still beautiful. :)

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  5. Jess -- what are those "other treatments" that you mentioned? Thank you!

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    1. Hi SoDoWarts, here's a link to my routine page. It's where I update my treatments: https://jessicaoldwyn.blogspot.com/p/blog-page_17.html

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  6. Did you already go keto for a season?

    https://www.google.com/amp/s/zerocarbzen.com/2015/05/31/healing-brain-cancer-with-a-zero-carb-ketogenic-diet-by-andrew-scarborough/amp/

    http://ketonutrition.org/

    Blessings!


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    1. Hi Matt, Thank you for the comment. I've definitely played around with the ketogenic diet, and spent several months on a few occasions, doing the restricted keto (based off of Thomas Seyfried's research). It was very difficult for me to maintain, causing increased seizures, dizziness, and fatigue. I really appreciate you reaching out with this information (Andrew is a pretty incredible person), perhaps I'll go back to cyclical keto, which has historically been less difficult for me. Take care! Jess

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