Wednesday, June 18, 2014

UCLA Results

finally mustered the strength to call UCLA for my MRI results. They agreed with the UW radiologists that there is no visable tumor. The fun twist is that instead of automatically planning my next MRI with a Dopa PET at UCLA in October, they recommended that I just stay here in Seattle. If the Seattle MRI shows up questionable, then I will need to fly down for a Dopa PET. So now, all I need to do is keep fighting, stay healthy, and have no new growth in October. Not having to fly down to UCLA would be a huge relief, both financially and emotionally. 

Flowers from Danny after the good news...

My brain is still hazy and slow after my seizure, so this is all I have in me to write. Like an earthquake, there are aftershocks of energy throughout my brain and at times it feels touch-and-go so I really need to force myself to rest. As it always is, I know the threat will subside the longer I make it from the seizure. I just have to be patient.

For now I will relax, falling asleep for my nap with relief, and a smile. I can deal with seizures for the rest of my life, I'd be happy to. Compared to the tumor, they're just like gnats. Annoying, but I can live with them.


  1. Such great news, Jess! So happy to hear!

    Hope you gets lots of rest.

  2. Thank you! Love this!! You are so loved and admired by me!! :) Relax and be a peace sweet girl!! Love, Maleka

  3. jess, if you haven't already seen it, this would be an interesting read: your surgeon, linda liau,performed her 3rd brain tumor surgery last november.

    blessings - zooie

    1. Thanks Zooie! I've run across her website before, but it had been a while. I didn't realize she had another surgery. I'm so excited she got into one of the vaccine trials, with Dr Liau. Fabulous! Thank you for sending me this :)


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