Tapering Off

Today is the first day that I'm not taking an anti-seizure pill (although I have to take one tomorrow). YAY!

Let me explain. Originally, I was prescribed 1000mg of Divalproex a day. Last week, I only took 500mg per day and now, I'm down to a pill every other day for the final week. By next Monday I should be done. I'm FREE! Hopefully, not only prescription free, but also seizure free.

I want to thank my friend Nancy who is a pharmacist. I was adamant to get off of the medication, and my nurse at the UW, as soon as I told her I was not going to follow her standard of care, never again responded to my emails for a taper down schedule. So, Nancy helped me plan a tapering of the drugs and I really, really appreciate it.

I have been incredibly fortunate to have so many people helping me throughout this journey. At each turn, I get great support.

I'm still scared to have a seizure, but each time the fear creeps into my mind I take a nice deep breath, and exhale slowly. I will not live in fear. I will not take drugs that wreak havoc on my body and mind. I will not give up. I will not just do what the doctors tell me to do. I will make my own decisions. I will research my options. I will try to keep my care natural. If my health deteriorates, I will reevaluate.

A final email from Walt (sent to all of Dee Dee's friends), Dee Dee's husband, which I received this morning:

Hello all, 

This note is to let you know that Dee Dee passed away in her sleep early this morning. It was a long journey for her and we trust she is now at peace. I know how much your love and support meant to Dee Dee over this last year. Thank you for that. 

We plan to have a gathering at the Senior Center next week and will send out a notice once arrangements have been made.
 
Walt

May Dee Dee rest in peace, and Walt know that he's loved.