Mar 17, 2014

Dan's NYC Adventure

Good Morning! Busy week ahead, and my mind is already happily spinning. I've been buzzing around the house doing final laundry so that Dan and I have all the clothes available to pack. Yep, you read correctly, Dan's joining me in New York for my immunotherapy shot. We fly out in the morning. It's his first trip to meet my doctor, his first trip to New York, and I am giddy. We have always kept Dan home, working, to off-set the cost of travel, and the treatments, but it turns out Dan's job actually wanted him to take it off. The best part is that it was only $350 to include him! What a cheap date (as far as travel goes). We have dinners planned with friends, and hope to check out ground zero and are packing running shoes to explore Central Park. It's going to be unforgettable. I'm hoping this can be a way to celebrate our anniversaries that we forgot in 2013. We're often so caught up with work, MRI's, treatments, supplements, venom applications, and the daily grind of paperwork, bills, laundry, groceries, cooking, etc. that we forget big moments, big celebrations. You know how it is - we all get busy. We do a great job of celebrating, and laughing, and loving each other daily, but sometimes it's nice to enjoy big moments like our first date (the most romantic day of my life), or when Dan and I shared our vows underneath the Eiffel Tower, diagnosis day, or when we signed our marriage certificate. We certainly have a lot of monumental dates, days that forever changed our lives, and I think this trip will be a great reminder of those moments and the deep love that we share.

On another note, have you happened to notice the cute grey hat in the upper right hand corner? It is made by our friend Rachel, and all of the proceeds go to my medical account. It comes in other colors, and more than the amazing hat that she designed in my honor, you have got to check out her amazing Etsy store, That's Sew Yarn Cute. It has the most adorable handmade children's items, it makes me want to dress our cat. No Joke. Here's a couple of my favorites...aren't they cute?! You can click on her company name, or the grey hat in the upper right hand corner to visit her website. Or you can just click HERE.

DOG front and PAW-PRINT back of almost any breed custom baby bodysuit 

When Dan and I get home from New York, we'll be heading out for Friday Harbor for the Run Ladies Run fundraising race. That night there will be an island dance with free entry. There will be food and drinks available by donation at Brickworks. Everyone is invited! It's for all ages. There is no fee to get in, so please stop by from 5:00-9:00 pm Saturday. Come for a hello or a hug, or just to mingle with friends. It's a fundraiser, but more than that it's just a great way for Dan and I to thank everyone for the ongoing support. We feel very fortunate, very loved, and can't wait to say thank you in person.

I''ll write more information later in the week. Hope to see you!

Mar 13, 2014

Dark Clouds Don't Dance

Why are we so mean to ourselves? Especially women. I know I'm not the only one who does it. I have a little voice in my head that is really negative. I don't know why he's such a jerk, or why he seems to be male, but I don't like it. I know Dan would tell him to buzz off, why can't I? He pipes up when I look down at my thighs, when I pass my reflection. He always pipes up about what I eat, how much I eat, my activities, my life. He's really getting on my nerves. Why do we allow that, those mean voices in our minds? To a certain extent, I guess it can be a good thing because it can encourage change, but that's only if you're motivated by punishment and fear. It gets worse when I research, when I find myself falling through the vortex of the tumor world. I watch the amazing lifestyles that some lead, full of perfect calorically restricted ketogenic diets, hundreds of pills a day, tonics, meditation, exercise, rest, these people are amazing - not cheating, just pure dedication. Some have gone well over a year without a single cheat. I read and I'm inspired, and yet reading about their journeys make me feel like I'm a lazy slouch, that I'm not trying hard enough, that I'm failing, that I'm killing myself because I'm not making smart enough decisions, like the green apple I had for breakfast this morning. In the restricted cancer diet, eating a green apple might as well be a cookie. It's sugar. I know, because I've tried so very hard, that I am not cable of being completely regimented. It makes me feel crazy, and trapped, and snuffs my little light of happiness and hope. I want to live a long healthy life, but I also want to enjoy myself. But, because I've researched the crap out of cancer diets, I also know too much to be ignorant so I end up never feeling happy with my choices. If I'm too strict, I'm miserable. If I'm too lax, I feel guilty. The little guy in my head is mocking me. Jerk. I'm doing exactly what he wants me to do: feel crazy.

So what do I do? Do I quit researching, quit reading up on new treatments, new information? I wish I had the type of constitution that could just slough stuff off. I'm working on it, but man is it hard. Clearly I need to force myself back into yoga and meditation. But I'm so bad at it. Both always feel great at the time, but I don't crave them, instead they feel kind of like a chore. I feel bad even saying that, but it's how I feel. I guess I have to just keep up the running. I feel like that a-hole in my mind that loves to tear me down is not a runner. He hibernates. He hates it. What a lazy SOB. See, look how you guys just helped me work that out? We just found his Achilles heel. Ha! I think we all have a nasty worm that infiltrates our thoughts. The trick is to outsmart him.

It's stressful living with the MRI's and weight of having a tumor, never knowing if you're doing enough. I don't want to get a bad scan because at that time it will be too late to backtrack and be more strict. Ugh. The world of brain tumors. Never knowing if you can beat it, never knowing the perfect combo, if those consistent apples will be enough to feed the tumor to kill me. Who would have thought this could be so hard. So detailed. So complicated.

As for the melanomic whatever that is growing on my breast (and the other mole), I have the OR scheduled for April 3rd. My reconstructive surgeon is pretty cool too, so that is a huge relief. It will be nice to get those areas removed. It's a heavy weight watching them grow. Of course, just as I unload my fears, my stresses on this blog, I am still chair dancing as I type. I've just remembered that when you dance, even if it's just with your shoulders, you can't have a dark cloud. It's impossible. Note to self: dance more.

A few things that made me smile today: