Down Then Up

Ok, better news, Dr Liau pulled my MRI for a second review after I had my seizure (she just emailed again to clarify). She believes there is just a very, very small change in the tumor resection area, and it could be due to the Newcastle Disease virus shot which I received 11 days before my MRI.

Danny and I are using this as a wake up call. We're taking time to rest, and revamp our diet to really focus on low inflammation foods (feel free to post any yummy recipes!). I'm also trying to integrate as many low inflammation supplements throughout the day as well.

We feel very relieved, but nervous too. Living with brain cancer is stressful. One day you're just trying to live your life, and have fun with your friends, the next you're faced with radiation and everything that entails. Each time they look at my brain I worry, and lately, I haven't been feeling great anyway.

I need to stop trying to be social, and just focus on healing. It's hard though, I never want to miss out. But when dealing with cancer, you don't get to do what you want or live like you want. You just have to be happy living.

Below is a picture of a local raccoon that walked with my dad, Emma and I down to Green Lake a couple of days ago. We're pretty sure he was deaf and blind....and I'm positive he's adorable.

Bigger Fish To Fry

We got the MRI results from UCLA's tumor board. At first we received a phone call from Dr Liau's office stating everything looks great and we won't need to get an MRI for 6 months. Then we got a personal email 10 minutes later from Dr Liau with the bad news. There is increased T2 Flair, and an area of concern. They want me to do an MRI in two months and if the results aren't positive they will recommend radiation. If I have any more seizures I am to see a neuro-oncologist and begin anti-seizure medication.

I'm not sure how the wires got crossed, but don't really care either way, it doesn't change the truth. Today was a complete roller coaster and it's only 3:19 pm.