Nov 18, 2012

Two Irish Boys

I'm relaxing on the couch under my favorite faux fur throw. I truly do not even feel like I have anything wrong with me! Still got the numbness thing going on, and lack of dexterity in the hand, but shoot that's nothing. I'm thrilled!

I've already gone on several three mile even a couple of four mile walks with friends. In no time I'll be jogging around the lake :) I have to keep pushing the limits because I'm bored. Dan's working 10 hours a day which takes him away from the home on average 13 hours a day, and now he's working spans of 9 days in a row. I'M SO BORED. I am so grateful that Dan has a job, I remember the year and a half when he was out of work (which was perfect for nursing me to health from the first brain surgery). I feel dumb even saying anything. Maybe its because I'm jealous. I wish I could work. I can't wait to wake up in the morning, be all sleepy and groggy and rushed, and get in traffic as I drive or ride the bus to work. I can't wait to have co-workers, and office politics, and new friends, and hear about other people's lives on a daily basis. It's going to be so fun!

So here's the current deal, I am in talks with doctors at the German clinic to do the dendritic cell therapy. I have a phone consultation on Dec 4th. In the meantime, I've been trying to get all of my blood work, liver enzyme levels, and key information - like pathology, pre-surgery MRI report, surgery report, post-MRI report and such. Gotta call around to a few departments at UCLA, get the forms for them to release the documents, then have them sent. It's wonderful that I can speak and process information! I think of how grateful I am multiple times a day, how this surgery is exponentially better in recovery. It's fantastic!! Of course there were the dark moments, but since I'm in the sun now, I don't focus on the clouds :)

Here's a sweet video that my buddy Meghan sent me from YouTube. I know that I say this a lot but.....this is the cutest video!!! My eyes started watering and I got goosebumps. These two boys are so talented, and adorable. Trust me on this one, you will love it!


Nov 15, 2012

POW

Things have been steadily improving. I chose to slightly taper off my muscle relaxers, Tylenol and Aleve. My last pills were 48 hours ago. I am no longer on any type of medicine, and I'm telling you it feels GOOD! Here's the story....

This surgery I had sutures instead of staples. Sutures are basically extremely tightly woven stitches. Mine was threaded through the skin with a very thick type of wire like material. The stitching was incredibly tight which I appreciate (it made for a very small scar), but as it was removed I could feel my scalp relax, and the pain increased into a deep throb. I'm convinced that the horrible pain was due to the sutures, then to the suture removal which caused a shift in the skin all over my head. After four days it started to get better, and then POW.

Typically, sutures and staples are taken out at around 10 days or so after surgery. Because it was my second surgery, Dr Liau scheduled me for 25 days out. It makes sense, I can only imagine that each time they saw through my skull it becomes weakened. The incision is truly beautiful, half the width of the original scar (and only slightly longer). Before the surgery Dr Liau looked at my scar and asked me if when I get a small cut, does the scar pucker along the edges? I looked at her sideways and thought to myself, 'Doesn't everyone's?' Apparently not. It's only like that for certain skin types. She's so smart!! I can't wait until I can compare the different scars from both surgeries. Hopefully Dan can take some pictures soon.

Ok. I'm pooped. I have so much going on but it takes about 2-4 hours to do a post and although I can not feel my right hand, it is starting to completely quit on me so I have to click the keys with my left hand like a chicken and its' beak. Awkward. It's hard enough to type and make my left hand hit the right letters, but when I'm tired it all goes to crap.

Here are some random photos I've taken over the last week or two...

First Trip Around Greenlake In My Wheelchair
Supporting Movember (outfit furnished by MMF)
Bingie & I Studying Our Vocab
A Love Photo From Jules