Great, Pretty Great, and New Plan

ok. Patho,ogy. Still low grade. YESSSSS! howevery, the tumor is not with9n the density poerameters, therefore i will not ne able to get the personalized vaccine. RATS! So, now we email Dr Laiu and see if we can have my tumor tissue and take it to Germany or somethimg ajnd pay for the dendritic cell therapy out of poctet. The clinical trial has litt.e rules and if we go to germany they can give me more vaccine and stuff. its compicated, somthimg ive been researtching for about 7 months. i was obviously hopinjg the clinical trial would get it done, but we have more options. i will not give up, there is no where i wont go, thravel, exhaust optiojs. just another bump in the road. we just found out last night and it was a lot to process, but like usualy, we sort it out, talk it out, and get back on track. didn't sleep last two nights, about total of 4 houjrs.

this jojurney is wild, just when you think ypu have a plan 9t changes :) its practically hilarious, you just kee0 planning, keep learning, never stay stagnant, nevver give up, not be afraid taking chances. ASo at this point herman is TOAST. We know that the tumor always grows and there is seme invisable tumour, but we just restarted my clock! i hope it works to go to germany and do the dendritic cell therpy, focus on diet (only proven diet to combat brain cancer is ketogenic, or less severe is paliolithic - low carb, low sugar). If i keep my supplememts going, really target them so i dint get so exhsustive of so mapy pils, excercise and i will be GOLDEN!

Dr Liau was very disappointed that i dint get the vaccine, but also happy that my tumor is not worse :) we want the lowest grade, least density, least invasive, and things as\re looking SWEEEEET!! We have so many things to be happy for, im so incredibly grateful!!! i do wish we were getting the vaccine, it was the icing on the cake, but no deal worry about it, its done. on to the next. things always cange, cant really hope for definite thiings you dont really know what;s best. does that make sense? back to our never ending battle. i was pretty tired last nignt, a litt;e down becaise the clinical trail wasnlt happened for me. i just wanted thing to be easier. but know im giong to take this advantage to explore germanys clinics, the wor,d, review again all the cool treaments, and accept that my path is in credible and very fortunate. this journey keeps giving more froends, new surprises, amazing opprotunities. no complaints, seriously! thank you again for all of the love and friends. i am so much better than if ihad never had this challenge. youi guys make me a better person.

Serious Cavewoman! Look out

ps not to brag or anything, but i can hold a glass and drink from my right hand!!! not always, and a few mistakes, but seriously, killing it, and using a fork. definitley NOT laduy like, kinda like ogre or cavewoman, hilarious, but exciting! when recovering there is no point too proud - just celebrate.

Oh mighty have fallen - poo saga contines

so frusted havnt been able to poop cover a week!!!!. Wish i didnt have to talk about -in but  that's the big problem. every const0atioun pill, every max dose, prue juice, two kale smoothy, a day, powders, veggies, EVERYTHING; lots of water, my body so frustated. so gross. and pain. RATS. dan went to get more options. while i was in hospital the doctors said they were givng me [pain killers for doses for a 300 person. my complely warped. they could not believe how much pain i edure and toerate and not be knock out. iwould silent sob through the night, then nurse feel sobad, up my dosage. crazy! it makes sense that i need three thimes the dose. my mody is all out of wack.

not sleep from paing in the stomack. just lay in bed all nigth waiting. cramps and cramps, unreal.

sorry to tell you so much. hope its okay.

if my bowels are my biggest problem its kind of funny, except it makes me sooooo cranky :) SO CRANKY!!

on anther side my right side is movi g more, its greatT! i am rigbht anded and trying to type with both hands, this is new! coo! my body is still weird, ican see mybody and arms andlegs, but i dont recagn9ce them. like a out body experiuence. like a third person, or i see dan but i see him but backwards. almosrt ipossible to explain. like im a sciece prject. totaly amazing!

im working on randlm stuff, fun to prgress :) wish i could tell everthing maybe in time! tigle in arm and leg ist great! even when its uncomfortable. i will do it! right after a nap. the constaption has me stumed though :) so gross but ultimately the biggest thing in my problems. ps i speak way better than i type. that makes me very hapy that people understand me speak9ng. sweet!!