Friday, September 7, 2012

Post NYC Report

My college roommate Jess. It had been 10 years!! So much has changed, yet she's still the sweet, sassy girl that I have so many incredible memories with. Aaaah, the ridiculousness of college. We shared a lifetime of laughter :)

Mom getting the hang of things

The appointment went incredibly well. I highly respect Dr NYC. He seems to be the perfect fit. He reviewed my entire case, and was able to recommend a few more supplements (printing out research proving the effectiveness against gliomas/astrocytomas). I shared my plan with Dr NYC, and we discussed pros and cons of my options. Ultimately, we mutually decided that the best course of action is for me to do the clinical trial, and continue on all of my supplements. Dr NYC and I will be in contact, and I will end up heading to see him again after the brain surgery, once I am healthy enough to travel.

After my appointment with Dr NYC, I immediately emailed Dr Liau to see if we could schedule the brain surgery. She responded within a couple of hours, and I now have the surgery on the books. My brain surgery will happen on October 18th, at UCLA. I'll need to travel little over a week in advance in order to complete all of the necessary testing, and I'll need to stay in LA for two weeks after the brain surgery to make sure that I'm healthy enough to travel. All-in-all it looks like I will be in Los Angeles for a month. Thank you to everyone who helped with the cherry fundraiser, for all of the donations, and the Crystal Seas Kayaking fundraiser. The money is going to be incredibly helpful! We're looking for a rental in LA close to UCLA so that my parents can stay there, then I can recover for a few weeks. Dan will be flying in every weekend to be with me....eeek....this is really happening!!!

As a final note, the most influential statement from Dr NYC was that he recommended the clinical trial since the results are so remarkable. He says that there's a chance that if I do the clinical trial, I may never need any further treatment ever again. It's not probable, but it's possible! The trial is still pending, and we won't know the results for years, but that's the point, patients are exponentially outlasting their "termination dates" - my words not his. There is a very good chance that even if it doesn't cure me, I wouldn't need treatment for years, and years, and years. This could be HUGE.

I'm terrified, and excited, and exhaaaaausted. So I think I will go nap. Love to you all! And thank you for always supporting me. Life changes so quickly around these parts, but one constant is the love from my friends, and my family. Thank you.


  1. Exciting news!!!! So glad the trip was a success! My calendar is marked for the 18th...

  2. So excited for you! I'm smiling ear to ear. I am praying for your upcoming surgery. Keep positive as it sounds like you are doing. Jessica

  3. "So Cal" PattiSeptember 7, 2012 at 3:50 PM

    Wonderful to hear that the trip to New York was a success and that you have a definite plan now! Lots coming up in a short period of time but I see nothing but POSITIVE for you! You will conquer this Hermie character, get rid of him forever, and move on to a long and wonderful life! And I will continue to cheer you on along the way!!! Love You, "So Cal" Patti

  4. I am so very excited for all of the wonderful news and possibilities! I will be thinking of you and your family in the days and month ahead! I can't wait to hear more wonderful news!! You are amazing and I am in awe of you!!

  5. Great news Jess! If you (or your family) need anything while you're in LA (even if it's just a ride from the airport), let me know. I should be there for most of October.

    Jeff Diffner

  6. Yay! We need to get together... Glad things are going so well... My daughter Lorraine wanted you to know she left a prayer for you at the wall when she was in Jerusalem. We think God wants you to be 100% too!!!

  7. Wonderful news!!! You give hope to so many to never give up, keep looking until you find exactly what you want! I share your blog often, such an inspiration you are!

  8. Hi - would you mind sharing what new treatments that dr Chang suggested? I have found your other treatments to be very helpful in determining my own supplements. Thanks!

  9. Great news Jess!! California is a great place to be in October. :)
    ~Erin and Pete

  10. Such great news, Jess! I'm truly excited for you all, and continue to think good thoughts. :o)

  11. Jessica, tears of joy when your dad told me the Great News.

    Prayers continue for you!

    Rich and Andrews

  12. Dang spellcheck. This is not a Minnesota handicap thing...I don't know an Andrews but Love from Andre!


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