Jul 10, 2013

Stabilizing Blood Glucose

I was worried, while I was out of town that my little garden might have died from the heat but alas, instead, my flowers were blooming!



I'm starting to feel more rested. I had a fabulous 11 hour sleep last night. It was glor-eee-ous. Since I'm back and I have less than 10 days before my MRI I wanted to hit my restricted ketogenic diet hard, but my blood glucose numbers were wild. I don't know if being on the restricted ketogenic diet causes your body to become more sensitive to insulin or perhaps desensitizes you, but it has been insane. Before I headed out to Friday Harbor last week I had an episode where my blood glucose fell so low that I felt like I was having a seizure. We believe it was not a seizure though, just a severe hypoglycemic attack. It was very scary. Because of that episode, we decided that while on vacation I was not going to be fasting or restricting calories, or being nuts about food choices. As you know from the previous post, my body was all messed up from traveling and excessive excitement, so it's probably a good thing that I wasn't being crazy about my food too.

Yesterday, back on my regular plan, I was freezing and very dizzy. I wasn't even doing anything, I was sitting down. I quickly decided to check my blood glucose and it was 45. That is dangerously low. I was having problems thinking, it was confusing me to even work my blood glucose monitor - I couldn't figure out which end of pricker thing to draw blood. I immediately ate 2 ounces of nuts (that's quite a bit), and it caused a temporary rise of 13 points, then within moments I was back down to 51. I couldn't stabilize my numbers for the life of me. Worried I was going to endure a hypoglycemic seizure, I ate half of a banana (definitely not ketogenic). I don't know what's going on in my body, but this tumor killing blood glucose range of 55-65 for Seyfried is very, very tricky. And if you're not careful, it can be dangerous.

I know I can figure this out, and I know it will continue to get easier so I'm not worried, but I figured I'd share my experience in case anyone else out there trying to do Seyfried's plan had encountered similar problems. It's very tricky playing with low blood glucose when you already have a seizure problem. Almost like playing with fire. But if we didn't play with fire we wouldn't have much of our food. Know what I mean? And I know that it's important to keep my blood glucose very low in order to keep circulating glucose low so that I minimally feed the tumor. I say minimally because it's impossible to completely limit glucose. Our body creates glucose from excess glutamine (protein), and also I've read that our bodies can convert one of the triglycerides from fat (not much, but still important to know - that's why you can't eat unrestricted fat) into glucose. Anyway, I'm getting too detailed, which can get boring. It's all stuff that you'll read about if you choose to get into this lifestyle. In fact, here is the most comprehensive website that I've ever found about the KD. It is inspiring, encouraging, informative, and I enjoy rereading it often just to boost my excitement about the program. This diet is fabulous for anyone, it benefits cancer patients, those with Alzheimer's disease, diabetics, those with seizures, and so much more. The information is fascinating, whether or not you want to follow it. Enjoy! http://www.ketogenic-diet-resource.com/

It's too bad this restricted ketogenic diet is so clearly proven and undeniable. Carbs are delicious :) I can't help but notice the similarities between carbs and cancers, and the brain, with seizures, Alzheimer's, mental health, migraines, and of course diabetes, and so much more. We are killing ourselves with carbs and sugar. The carbs and sugar aren't just making us fat, it's literally causing diseases, and cancer, and brain metabolism issues. Looking at it now, it has become obvious to me. There's actually a new prescription "food" named Axona which helps people with Alzheimer's disease. It boosts the body's ability to create ketones so that the brain has more food. The Axona website says that the side effects from Alzheimer's are due to the brain's inability to metabolize glucose. So, if you're on a standard diet which is all about glucose and no ketones, the effects of Alzheimer's are going to worsen. However, if you switch to a ketogenic diet it will lessen (theoretically - I am not a doctor) the side effects, strengthen the brain, and possibly even heal the brain a little. There is a lot of research out there, and most doctors don't know anything about diet. (Blah, blah, blah, "heart healthy diet" - no bueno, that's actually the opposite of what you should be eating.) I'm not trying to be rude, it's just a slow process to integrate new research into hospitals. Practicing doctors are very busy and usually aren't researching up-and-coming stuff. Anyhoo, just wanted to throw that out there in case you hadn't heard that the ketogenic diet can help a lot of conditions (not just brain cancer). I hope this info helps at least one person. :) I can't say enough how I wish diet didn't matter, that we could eat whatever we wanted and there would be no repercussions, but it just isn't so. The good news is that we can help heal ourselves (to a certain extent), and that is empowering.

As a side note, people with Alzheimer's don't have to get the prescription Axona powder, they can just get on the ketogenic diet. There's no trick, it's just the pharmaceutical company found a way to make money off the 4.1 ratio of fat:carb+protein. Just wanted to throw that out there. It certainly does provide another tool in the belt though!

Jul 9, 2013

2nd Annual Cherry Fundraiser

Oh my goodness, I am exhausted. Best week everrrr. Of course, I have a habit of saying things are the best ever, or that's the nicest person in the world. Or, I'll meet someone once, then in the future I'll refer to them as my friend. Lots of friends laugh at that, but maybe it's an island thing? We're like family, and that is just how I was raised. I'm still working on not making friends with everyone I meet on the metro bus (it scares the bejesus out of Dan and my parents).

So, on to some very exciting news...it is time for our annual cherry fundraiser. This year our clan has been so exhausted with all of the NYC, NC, and other travel/research/life that we just don't have the energy to tackle the Seattle and Roche Harbor cherry booth sales, or the individual sales. Luckily for us, Kings Market and Market Place in Friday Harbor were interested in purchasing cherries from us. So yesterday, my father stopped by Stemilt Growers in Wenatchee and they loaded up boxes and boxes of freshly picked cherries. My dad continued on over to Anacortes to catch the ferry to FH, he unloaded cherries with help from KM & MP, hugged my buddy Libbey, then Dad caught the next boat off the island and drove all the way home to Wenatchee. Talk about an amazing father!!! I am so thankful to Libbey Oswald and John McBride for buying cherries, it is such a treat for us to be able to sell a large load of cherries.

So, starting today there are cherries at Market Place and Kings Market. Please, if you stop by either store and buy some cherries, think of me and know how grateful I am for the help - just smile and know that I'm smiling and wishing I could hug you. The island is integral to who I am. It's my Disneyland, my heaven on earth, my sanctuary and where I find solace. Thank you for loving me, raising me, growing with me, sharing memories, for teaching me, for all of the amazing friends and of course for giving me my wonderful husband (thank you Linda!). Thank you Friday Harbor, I love you.



I'm still very exhausted from my amazing trip to Friday Harbor, so please forgive my lack of email responses and such. By Saturday morning I was so exhausted that I slept most of the day, and evening. It was such a bummer too, I missed out of sailing and kayaking. It's tricky though, as I get tired my right hand, arm and leg stop working, they become dead weight. 

I've gotten pretty great about hiding it (if I do say so myself), but it always scares me. The only thing to do at times like that is to lay down, even if I don't sleep. And, as you can imagine, my tumor problems are not conducive for kayaking :) I bowed out of the activity, not needing to explain which was nice. I don't like to dwell on the issues, not wanting to make it a bigger deal. I'm just excited to get invited, and I'll bet if I really wanted to go the girls would have found a way to figure out a Houdini solution. It's tricky because I don't want to have friends not invite me because I have cancer and am unable to participate at times. My true friends have not batted an eye about my limitations, always wanting me around, knowing there's always a way to work it out, and it feels really good. Yes, I have cancer, yes, I'm also human and want to do everything everyone else does. I don't even mind bowing out, I just adore my friends for including me, then also understanding when I'm too tired. They make me feel very loved.

By Sunday morning my right eyelid had joined my rogue right hand, arm, and leg. It almost looked like my eye was melting. Thankfully it is sunglasses season! And if I need to take the sunglasses off I just cock my face, or left eyebrow. There's always a way to trick people. I'm becoming a master of disguise :) or of disguising my ailments anyway. The eyelid is slowly getting better, and I'm sure once I'm rested I'll be back to new in no time! My next MRI is on the 20th of this month so we will see what's going on in my brain soon enough. For now, I'll rest.

Here's a few random photos of the trip...









I wish I would have taken more pictures. At the time, I'm always having so much fun that I don't think about it, but I've got to just make it a priority. Looking at them always makes me smile :)