I'm grateful for so much each day. Things pop in my head, and then I start smiling. It can be as simple as, "My house is so rad. It's full of daylight even when it's rainy outside!" Lately, though, I've been going for the big ticket items. My mind has been full of happiness thinking about how wonderful it is that I haven't had a seizure since August 5th (the day before my birthday - I was probably just too excited!). I haven't taken anti-seizure medicine since September 27th. And, biggest of all, as Danny and I were running errands today, I realized that I could have just finished last week as my first week of radiation, but instead, I'm happy and healthy and trying to kill this brain tumor with alternative means. I realize that I might have to do radiation (eventually - if there is no other option, and it starts completely growing like an even nastier weed), but right now I'm enjoying the ability to take this into my own hands.
Yesterday, my parents, Danny and I met with the other brain tumor fighter that has been taking the artemisinin. We met with her and her husband and we shared notes. We talked all about the different protocols, the different research out there, and we reviewed both of our pathology reports and all of our MRIs. It was fantastic and incredibly inspiring. Our friends have managed to completely shrink her brain tumor through alternative means. It's unbelievable. Although we had never met, there had been email after email for the past year or so. We combined heads and together, I feel like we can conquer this.
At first I was very concerned because there are so many different types of stage 2 astrocytomas (which we both share), I wasn't sure if we were matching apples to apples. But after sharing our pathology reports, our friend has the same type, along with the "negative for loss codeletion of chromosomes 1p/q 19p/q (can't remember off the top of my head which one has which letter). Anyway, my point is that I have those two chromosomes, as does my friend, which means that our tumors are more aggressive and signify a shorter lifespan. Anyway, after watching her scans, and seeing her brain tumor shrink and shrink, scan after scan, I knew that things were looking up!
Maybe surviving a brain tumor isn't just about luck, or fate, or genetics. Maybe, just as I was hoping all along, it might be treatable or even curable by using healthy choices, and by following herbal research. There just might be a way to treat a brain tumor with diet and supplements. Sometimes the supplements are in massive doses, but who cares! It could slow, halt, or kill the tumor. Wow. This is so big. I just have to keep positive about this process. I'm taking the safe side, unlike my friend who took some pretty substantial amounts (with no serious side effects), but I figure I can still up the ante at my next MRI if things aren't up to my liking.
I'm just so grateful to have this opportunity to squish this with healthy means. I'm forever indebted to our dear friends.
It is going to be so hard to wait for my next MRI in January. I want to start seeing results now! I keep telling my overzealous soul, "Patience little friend, there is no rush. Enjoy each moment, each day, each kiss, each hug, each laugh, each smile, each apple, each salad, each green smoothie, each new smell. The time will come." Each time I have to tell myself that little mantra, my core warms, my cheeks get rosy, I start smiling, and I feel lighter than air. It's the best. It's my favorite problem to have :)
Truly, how wonderful is it that I am not headed for week two of radiation in the morning. HOW WONDERFUL!!! ! ! I know my oncologist probably thinks I'm stupid, but I don't care. This is my body and my life. I will not give up on it, or take the easy, less effective solution. I will fight, I will laugh, I will live, I will not give up.
Nov 6, 2011
Nov 4, 2011
Thriving
The other day my mom surprised me with a puppy spa day for Emma. Emma loves getting pretty and clean, and the dog was starting to get stinky. It's our fault since we take her out for jogs, and walks, regardless of the weather. Her nickname should be puddle. Anyway, while the sweet dog was getting beautified, I sat at a cafe next door downloading artemisinin research articles onto the blog.
It was so much fun sitting at the cafe, just a half a mile from our home. I enjoyed the walk, crunching leaves beneath my feet. Even though we've been living in Green Lake for a full month, I still hadn't been to a coffee shop, I had done all of my blogging and computer work from home. It was nice to have music, and delicious smells. The people coming and going, studying, visiting, laughing and reading, it was invigorating. It made me feel alive and important. That probably sounds weird, but there's something about being out in society, amongst people, that makes me feel like I'm doing something, something more than just being, just existing. Anyway, I loved it. Because of my dietary restrictions there wasn't anything I could eat, but I had a hot tea and that was good enough for me. If the cafe was busy I would have left, no need to take up the table, but I got lucky and there was plenty of room. It was a really fun treat, and a great morning (both for Emma and for me).
The downloaded articles on Artemisinin can be found on the right side of the blog, under Pages, and Artemisinin Research. It's just under the image of my big old tumor....oh my gosh, I just checked the link and the research isn't displaying. Damn. There went three hours of time. I'm not that handy with technology, especially when it comes to this blogger stuff. Let me try again and see if I can upload successfully this time. There's no easy way to upload documents. Please bare with me.
On another note, tonight is the WPIG Pigture Perfect Silent Auction! Yay! Hopefully my piece of art will raise a few bucks for Ryther. Even my parents are coming, and that's very exciting!
As for the diet, I've had a few friends asking what I'm able to eat, or what my current restrictions include. Here's my deal:
No meat
No diary (except for a glass of milk to take the artemisinin, dairy fat has the best absorption rate with the pills)
No processed sugar
No four
No alcohol
But, I CAN eat:
Vegetables
Fruits
Nuts
Seeds
Legumes
Whole grains (brown rice, bulgar, quinoa, etc)
Here's a typical day:
Breakfast:
Snack:
Lunch:
It was so much fun sitting at the cafe, just a half a mile from our home. I enjoyed the walk, crunching leaves beneath my feet. Even though we've been living in Green Lake for a full month, I still hadn't been to a coffee shop, I had done all of my blogging and computer work from home. It was nice to have music, and delicious smells. The people coming and going, studying, visiting, laughing and reading, it was invigorating. It made me feel alive and important. That probably sounds weird, but there's something about being out in society, amongst people, that makes me feel like I'm doing something, something more than just being, just existing. Anyway, I loved it. Because of my dietary restrictions there wasn't anything I could eat, but I had a hot tea and that was good enough for me. If the cafe was busy I would have left, no need to take up the table, but I got lucky and there was plenty of room. It was a really fun treat, and a great morning (both for Emma and for me).
The downloaded articles on Artemisinin can be found on the right side of the blog, under Pages, and Artemisinin Research. It's just under the image of my big old tumor....oh my gosh, I just checked the link and the research isn't displaying. Damn. There went three hours of time. I'm not that handy with technology, especially when it comes to this blogger stuff. Let me try again and see if I can upload successfully this time. There's no easy way to upload documents. Please bare with me.
On another note, tonight is the WPIG Pigture Perfect Silent Auction! Yay! Hopefully my piece of art will raise a few bucks for Ryther. Even my parents are coming, and that's very exciting!
As for the diet, I've had a few friends asking what I'm able to eat, or what my current restrictions include. Here's my deal:
No meat
No diary (except for a glass of milk to take the artemisinin, dairy fat has the best absorption rate with the pills)
No processed sugar
No four
No alcohol
But, I CAN eat:
Vegetables
Fruits
Nuts
Seeds
Legumes
Whole grains (brown rice, bulgar, quinoa, etc)
Here's a typical day:
Breakfast:
- Green Drink (a blender stuffed with spinach, one cup of water, a teaspoon of fish oil, a teaspoon of flaxseed oil, half a cup of blueberries)
- Vitamin E (400 I.U.), Vitamin D3 (400 I.U.), Vitamin C (500 mg)
Snack:
- Apple or a handful of mixed nuts
Lunch:
- Mixed greens salad (chopped purple onion, raw apple, ground flaxseed, squeezed lemon, shredded kale, fresh basil, fresh cilantro, chopped raw garlic, cracked pepper - on days when I have it, avocado)
- Black beans or brown rice if I have it left over from the previous night (I cook the beans from dry beans to avoid the chemical in canned goods)
Snack:
- Green Drink (a blender full of mixed greens, and a stalk or two of kale) or an apple (we have a whole box of organic ambrosia's. They're delicious! After that I imagine I'll change up my fruit.
Dinner:
- Mixed greens salad (same as above)
- Steamed broccoli
- Brown rice or some type of legume
Surprisingly, I don't live my life starving. I feel superb. I have more energy, less headaches, and I feel great all around. I'm still have my bad days of exhaustion if I do too much, but I feel so much better. I know that I can live on this diet forever if I choose to. Basically, I eat any and all vegetables, I eat some fruit but I try to keep it limited. Same with the legumes and whole grains, if I eat to much of those I get bloated and I get a stomach ache. I also prefer to eat raw veggies (except for broccoli, raw broccoli grosses me out).
So there it is. That's my basic diet. If you live in Seattle, or head there from time to time, my new favorite place for fresh juices and raw vegan food is Thrive Cafe. It is truly unbelievably delicious. It's heaven. Try it out! My favorite fresh, organic juice is Refresh, and I finish it off with an Elixer Shot, the Cobra. Both are delicious and make you feel like you're ready to run a marathon, and conquer the debt crisis, both at the same time.
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