Fifteen years. Can you believe it? I definitely can't.
So much has happened, so much has changed. What if I never had a brain tumor? Instead, it was a baby. I used to refer to Herman as my tumor baby because he has taken so much of my time and effort; I lost my identity and gained a new one, much like a mother.
Fifteen years is such a long time to navigate a cancer that never goes away. I've never lived without a tumor, not since we found him. It's exhausting, and rewarding all at the same time.
When you get a life-altering diagnosis like this, never knowing how each day will progress, it's impossible to plan. It's scary and hard to live a full life, well, at least it has been for me. I've tried to reframe things along the way, always working to create a positive spin when I get afraid or sad, or lose another friend or get bad news about my health. It became a muscle for me, and it's been one of the most beautiful things I've been able to cultivate. It's something that I'm grateful for every day.
Fifteen years. I wish I could celebrate with Udzi and Leor. I wish I could celebrate with Crush. I wish I could celebrate with Jessica. I wish I could celebrate with Marly. It feels like a momentous birthday, but no one is showing up to the party.
Fifteen years. I should feel better than this. I shouldn't be crying sad tears.
Living with cancer creates all the flavors of grief. They hit throughout each day, coming in waves. Some smell like freshly baked bread, or warm cookies, others hit like a hot, humid day with week-old trash. Pungent. Invoking an impossible desire to vomit.
Fifteen years creates trillions of feelings, reflecting is hitting all at once.
Thank you for following me along this journey. For being here in this moment in time few thought I would see.
Nice Post!!
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Hey Jess It's Larkin ! If it's possible could you have Kale or your dad reach out to me ? Thank you 425-327-4413
ReplyDeleteThank you for the update! I keep you in my thoughts and prayers always. You've helped me keep my own priorities straight. Much love from Friday Harbor --mm
ReplyDeleteHi Stranger! I've been thinking about you for so long. After you had your surgery in LA, I lost track of you, all I knew was that you had 3 tumors and I have not stopped thinking about you ever since. It sounds like you are doing well! Going to college, OMG! You are a rockstar! I would love to talk or email and catch up! My email is the same luckykat4@gmail if you feel like reaching out. Much love, Katie
ReplyDeleteHello, my name is Johanna. I stumbled upon your YouTube video and well, we have something in common. In January 2009 I was diagnosed with anaplastic oligo astrocytoma in my right frontal lobe. I definitely believe cell phone use. Surgery followed by six weeks of radiation and chemotherapy. I’ve just glanced at your blog but will take a longer look when I can. Wanted to reach out and say hi.
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