Jun 15, 2014

Water-Only Fast = Seizures

Oh fudgeknuckles. I did it again. The thing is, you'd think I'd remember that I have stress-induced seizures, and here I was doing a several day water-only fast. And the whole point of a fast is to stress the body so that it cleans out damaged cells. Stress, the word is written directly in the description. Fool. I always think I can handle more than I can. But the payoff (a completely regenerated immune system) was so great that I had convinced myself that I could handle it. I believed that I could make it three days and that it would be great. 

But that's not what happened. About two hours after that last post, I was waiting for the iron to heat up to press Dan's shirts, vacuuming the house to kill time, when I started to feel off. I told myself that everyone doing a water-only fast feels off, but I still made my way to the kitchen to eat the second half of my papaya. What I noticed first, was that my right hand and arm were icy cold, and I was having a hard time spooning the papaya meat. I thought to myself that I needed more fruit, that I didn't feel well but needed something gentle on my stomach, but we didn't have anymore. One trick from my doctors is to eat something sweet when you're about to have a seizure, I guess it's supposed to help slow the onset, or perhaps even lessen the intensity. When I have my stress-induced seizures I'm typically hypoglycemic (another reason that I've come to reason why I probably shouldn't fast). I've checked my blood glucose levels a few times just before seizures, knowing I wasn't feeling well, and it's always in the 40-60 range. This time, after having eaten the rest of the papaya I was at 69. Even with the symptoms, I was surprised by the number. I guess I should take that stuff more seriously.

After eating that final half of papaya, I didn't have anything sweet in the house, that I could think of, until I remembered my mom's cherry bourbon jam. It was a miracle that I got that jar open. (I live with a man with the grip of a giant.) I spooned out a bite, then realizing that I was out of my seizure pills, I walked to the bedroom to lay down. Looking back I knew it was coming, ultimately, from the time of the second half of the papaya, but kept pushing to check my blood glucose and get that jam. I wanted ice water too, but knew I was about to hit the floor if I didn't just give up, and retreat to a safe place. It was so cold in there, probably low 50's (we don't have central heat), that I had to get back up and turn on the wall heat. As I laid back down, shivering, I kept thinking, "Breathe. You're fine. You can get through this. This is no different than normal, other than the lack of pills. It won't change anything. Deep breaths." And as the pins and needles in my hand grew stronger and creeped up my right arm, hot tears dripped down my cheeks and landed into the basins of my ears. I stared at the ceiling as things progressed, ever more painful as it reached my shoulder, then my face. When it hit the top of my skull I could have thrown up from the inner hammering, but I was too distracted. I realized in that moment, that there was nowhere else for the energy to go but back into my brain. For many, these seizures often progress into Grand Mal seizures, or turn into a series of episodes. I braced myself. Already it was the most aggressive seizure since my onset seizure back in 2011, a Grand Mal while driving. Usually the tingling stays around my hand and arm, but this one kept progressing until it had engulfed my entire right side. And it hurt, oh God did it hurt. In unchartered territory, I didn't know if I was headed into a more scary state, loss of consciousness, vomiting and choking to death, losing control of my bowels or bladder. I new I was helpless, so I kept taking long, slow breaths. 

As I braced, I twisted my neck to feel the cool pillow on my right side (that half of my body was on fire to the touch). In that moment, the coolness soothed my face and my mind and I had the sense that it was going to be okay. Under my breath, I began whispering over and over and over, "Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you. Thank you."

As the seizure subsided, the pain continued to surge, but slowly lessened into a deep monotonous throb, both down my arm to my hand, and throughout my brain. Usually my seizures don't cause that kind of severe headache.

Not feeling well, still reeling, and aware of the seizure activity swirling in my body, I knew I needed more lorazepam, and I needed it soon. I called Emma into our bedroom (she's not normally allowed - she sheds too much) and asked her to come lay down on our bed to keep me calm. I've read that petting animals soothes the brain. I then called Dan and let him know the basics. He was headed home anyway, so that was handy. I then set down the phone to rest, just talking on the phone seemed to re-trigger the seizure energy in my brain. It was too hard to think, to talk. But I was scared, I knew I needed more pills, but Dan was driving, and I didn't want to bother him. I didn't want to put him in danger, knowing he was probably already speeding to get home, I wasn't about to add a phone call while driving to his tasks. I took several breaths and called my parents and gave the cliffsnotes of my dilemma. They asked for my doctor's name and quickly told me to hang up, that they would handle it. 


For the next 15-20 minutes I went in and out of various states of nausea, and tingling, and shivers, and hot flashes. I remember wondering if I should go find my empty lorazepam bottle and lick the old dust particles for some of the microscopic relief, but it seemed like too much energy to muster. The pain never went away, but did eventually subside. Danny was able to pick up the prescription, the one my parents were able to get renewed, I took a Lorazepam and everything eased up from there. The headache remained for the rest of the night, but I didn't have anymore seizures.

Needless to say, Friday was eventful, and perhaps a clear sign that I'm not meant to challenge my body with several day water-only fasts. Not as a person with stress and hypoglycemic induced seizures. You'd think I would have assumed it before engaging, but it never seems to get through my thick skull (not even through the surgery cracks) that I am not normal. I have special needs. I like to believe that I'm just like everyone else, but it isn't the case. One of these days, I have to accept it.


Jun 13, 2014

Day 3 Water-Only Fast

Oh man, I broke. I cracked. This morning I woke up with such strong hunger pangs that it was almost unbearable. I tried tricking myself with pint after pint of water. I sipped a few herbal teas, and paced around the house. I thought about going for a walk around the lake, but worried I'd get to the other end and run out of energy and become stuck. And it's cold today, and rainy (finally!) so that seemed like a bad idea.

Overnight, my stomach collapsed, and appeared inverted, concave. At least that's how it felt to me. It was very uncomfortable, kinda painful even. I still made it several hours, but finally relented. I grabbed the most gentle option, my trusty new favorite fruit, the papaya.


I only ate half, and discarded the seeds. Figured they would be too hard on the stomach. You can eat those gorgeous blackish green seeds. They taste like a combo of cracked black pepper and mustard. They're a fabulous anti-parasite food. You can toss them into salads (yum!) or add them to smoothies to clean your system, it's pretty neat. I love using unique foods for health. I figure there's so much that we don't know about the benefits of various food parts, but I'll bet there's a lot of healthy synergistic properties.

So, technically, I failed. I missed my goal by 10 hours. I ended up on my water-only fast for 62 hours. It's definitely the longest I have ever fasted, so I still feel accomplished. My plan is to remain on the fast to the duration, having only broken with that (delicious) half of a papaya. And man, I do feel better after having eaten a little. I imagine that the shorter than anticipated fast was still cleaning out some of my damaged cells, and probably stimulated my immune system to some degree.

From all of my reading around the interwebs, so many people said that when they broke their fasts they had no desire for junky food. That's how I felt yesterday, but man, I sent Dan a text a little bit ago and told him I could eat everything at PCC and then finish it off with a case of movie theater boxes of candy. Even if it was Good n Plenty which are categorically disgusting. So much for this changing my tastebuds, or squelching cravings. Oh well. Guess I still have to rely on self control. Less fun.

A couple of friends, during this experience, voiced concerns about the fast. A couple (remind me to send them Christmas gifts) worried that I'm too thin for a water-only fast (might be the first time I've ever heard such a thing about my body). Anyhoo, I am definitely not too thin. And to prove it I will share my stats.

Age: 33
Height: 5'7 (technically 5'6 3/4)
Weight: 140
BMI: 22
Body Fat: 28% [I still think the guy at the gym over-pinched with the calipers...:)]


So, according to the charts, I am literally dead center in the normal range. Healthy. I think that, perhaps, with the expanding waistbands of our culture - and the world - we have a skewed perspective of normal. I take it as a huge complement that some of my friends think I look "skinny" but ultimately, the optimum stat that I need to achieve is a body fat of 22%. A 6% drop. That's what I'm working toward. Body fat not only holds energy for cancer growth/tumor growth, but also toxins are stored in your body fat. Clearly, you don't want to waste away, you don't want to drop into an unhealthy range, but according to theorists, there is an optimal range for fighting cancer and they purport the 22%.

If you don't have much excess, it allows your body to focus on keeping your immune system strong. Your body can then clean out damaged cells, and keep things running smoothly. There's even research out there that people who live slightly underweight, have a lower incidence of cancer (lucky dogs). So, I'm trying to be healthy, to turn my body into a cancer fighting machine, to give her the most optimum chance to clean out tumor cells, to remove her tumor snacks. A side effect may be looking better, but that's just a byproduct. This is not driven by looks. I already feel good in my skin. More so than ever in my life I am confident. Probably since I have a different view on life since diagnosis. But I do acknowledge that I probably have a good ten pounds of pure fat that's visible on my body. I could lose that and still look really normal. I just need to curb my enjoyment of gorging on delectables. I don't know how I will ever kick my inner monologue that if one cookie is delicious, 10 is better. I feel like I was born that way.

I tried going raw vegan for two weeks and it made me feel awful. So I know that RV is not the lifestyle for me. I have a pretty good idea about what to do, and how I will be successful. It has to do with lots of veggies, and an egg here or there, and some nuts from time to time, and bits of fruit, but mostly it's about a caloric cutback. There will days that I don't restrict calories, perhaps for a hard workout day, or for someone's birthday celebration (like my own in August). It has taken me so long to figure out this whole diet thing, and laughably, I'm still living fluid with my beliefs. But it seems to be getting a little easier with the mantra of cutting calories, cutting portions, and eating clean, whole natural foods. It's all common sense stuff. You'd think I would have figured it all out a lot sooner, but I had to try several various cancer fad diets, hoping for a cure. Now I'm a little more reasonable. Hopefully this one works.