Mar 10, 2014

Cauterization & Kryptonite

Good morning world. Life has been busy, spent the last weekend in Wenatchee with family, holding a garage sale and as we're back home it's hitting me that it's already time for another immunotherapy shot. How did three months go by so quickly?

While we were gone Lemolo had his first bloom. It smells delicious, reminiscent of gardenias. Not the stinky synthetic cheap kind, but the most heavenly natural scent. Delightful.


Before we left for Wenatchee I checked my little salad garden and behold, I have sprouts!! I had been watching, and waiting, even sticking my fingers into the soil on occasion to make sure the seeds weren't planted too deep or to make sure they were keeping nice and damp. The latter, not too hard to do here in Seattle, of course.


With my excitement from the growing plants, we headed out for our weekend. We'd loaded extra stuff for the garage sale into Dan's car, the old 1982 Land Cruiser and went on our way. It was sunny, and gorgeous. We laughed as we made it up Steven's pass, enjoying waterfall after waterfall along the highway as cars zoomed by. Our old goat is a slow girl. We hit the crest with a glance over at the spotty skiers meandering down the hill. As the nose of our old goat faced east, Dan leaned over and tickled my belly, and told me, "See, I told you she could do it!" But as things go, it was only a few miles before old goaty pooped out. We were driving down the two lane highway when the engine stopped running. I can not stress enough how grateful we were to find, within only 200 yards, a pullout. The mountains have been dumping snow off and on so there was snow plowed along all sides of the roads with not many places for reprieve. As we were on the windy road we were lucky to not have been stranded on a blind corner.

We pulled over and tossed on some extra layers of clothes; the temperature was dropping quickly as the sun set.

Nope, that's not Seattle sunshine, it's the moon.

We attempted to fiddle in the engine, testing wires, and tubes, and parts for about 45 minutes to an hour. Then, we gave up and called my parents for help. My poor parents, their job is never done. By the time they got there it was pitch black and I was pretty damn cold, with my father's truck registering 31 degrees. We left the old goat by the side of the road and headed home, happy to be thawing.

The most amazing part of the whole experience was that Dan and I never got upset. We were cracking jokes, and as Dan tried to troubleshoot I jumped up and down to stay warm. It was just another adventure. When we were nestled warmly in my dad's truck we all visited, and laughed. I love it when even in tough times, people can keep their heads on straight and have a little fun. The next day the old goat was retrieved, and she is resting in my parent's warehouse. My uncle Michael came over and the men bumped heads to figure out the problem. The conclusion: fuel filter. Between the goat adventure, and the garage sale, visiting my sweet grandma a few times, and a family dinner with our uncle Dave and his new wife Berrit, it was a fantastic, and eventful weekend.

I have a day to rest, then I have an appointment with a reconstructive surgeon tomorrow morning. It's a preliminary appointment for my old mole issue that never seems to end. I have already had to go in for surgery to remove moles all over my chest, and I've also already had to have them go in deeper. Way deeper. Twelve stitches deeper. And this time I have two more deep areas they want to remove. One is on my areola (gross, I know, but we all have them). What are they going to do, remove my nipple, scoop out what they want to scoop out, then sow my nipple back on? Excellent. As for the other area, it's on my other breast. I love my breasts. They're mine, they're feminine, and they're disappearing fast. Three chunks in two years? Jeez. Ugh. Last time they removed a chunk from my chest I started having an aura that was headed into a seizure so we had to stop the surgery for a period of time. It was a mess, and nauseatingly traumatic. No one wants to feel cauterization, or tugging during a procedure. Gross.

As for my mind and my arm, and the cognitive issues and right side weakness, I don't know what's going on. It could be just my kryptonite (lack of sleep), or seizure activity, or the fact that my brain waxes and wanes due to all the instruments, fingers, scalpels, saws, drills, etc. that have nestled around in there. I keep hoping I'll get back to normal, that my brain will heal completely, but the truth is that there are varying degrees of damage after brain surgeries, and I've never met anyone who has come back after a brain surgery and said they are exactly the same. It might be just a hairline change, but it's a change nonetheless. For me, not being able to understand things at times (which by the way is a strong bonding point with my grandma at the nursing home - a silver lining) makes me a little sad. I don't dwell on it, but I wish it wasn't so. I'm only 33 years old. I keep hoping that I will one day wake up and notice that I'm me again. A non-confused me, with an arm and hand that will do whatever I want whenever I want - and to be seizure free. In the meantime, I plug along trying to ignore the oddities, trying to push enough to challenge my body, and my mind, so that they grow, and heal, yet recognize when to pull back and allow for rest. The challenges come daily, there is never a dull moment in the O'Carroll household (that's what we call ourselves). Please wish me luck at the consultation tomorrow; the whole thing scares me.

Mar 2, 2014

Oscar Island

How is it that it's 7:03 pm and I can barely keep my eyes open. So tired. It's Oscar night and there is the most amazing fundraiser going on in my hometown. I'm logged into my sister-in-law's Facebook account (since I don't have one of my own anymore) so that I can keep up with the live photo uploads. It's so fun!

The fundraiser is all about the Oscars, named Red Carpet Oscar Party and Fundraiser for Jessica Oldwyn. Watching all of the photos on the site, the smiles, the sparkles, the outfits, the swag, the decorations, the laughter I can feel in their faces, it's very special. I am one of the lucky people that grew up in Friday Harbor, quite possibly the most picturesque place in the world, and as I watch this amazing fundraiser unfold I feel like I'm living a Nicholas Sparks novel. Actually, it's more than that, I feel like I'm living a romantic comedy, an epic drama, and a documentary.

When you grow up on a uniquely isolated island, your friends become brothers and sisters. Your parents friends become aunts and uncles. Your teachers, bus drivers, your coaches, your sheriff, your bosses, the guy who parks you in line for the ferry boat, the people who take your ticket at the movie theater, the paramedics, everyone - absolutely everyone - help raise you. They raise you as role models, as patient ambassadors, and peers. It's the most beautiful family I could ever imagine. So many loving souls.

I'm I afraid I can't keep writing everything I want to say because my brain is throbbing, but I'm going to include the note I wrote for Courtney (my sister-in-law who worked tirelessly to put it together) to share at the event tonight.  

I am snuggled in a faux fur blanket on the couch with a pad of paper and my favorite purple fine tip pen. I keep trying to put the feelings in my heart onto the page, but I can't put it into words. Not well anyway. My heart is literally swelling from the kindness you guys are demonstrating toward me. It's overwhelming, and embarrassing, but only in the most outrageously magnificent way. The fact that you're a part of the Oscar night, this night to help me continue my battle to live life, is huge. What you all are doing for me is huge. Of course I never knew I would have to fight this battle. I never expected, as I trolled False Bay for beach glass as a child, or the years showing pigs at San Juan County Fair, or the summers working out at Roche Harbor giggling with friends, that I would be forced into such a struggle, especially at my young age. But here I am. And one thing that I have never felt, from the absolute beginning, was solitude. My island raised me, and my island heals me. You have continuously helped heal my soul; You have continuously helped heal my heart; You have continuously helped heal my mind. You have engulfed me with love my whole life and as I fight, you close ranks, you circle wagons and protect me as much as you can and I am so very grateful. I am determined, and I am a warrior, but I am also fragile, and I know I can not do it all. Thank you for helping me. Thank you for your support. This is the most exhausting journey I've ever experienced, but I believe my life is worth the fight. I want to live. 

I wish I could give hugs to thank all of you for coming, for your love, for effort, your generosity, and for your friendship. Thank you for caring about me, I feel very, very loved.

Here's a photo from our house in Greenlake:


Although I couldn't attend, I donned my great, great aunt's dress to join in the spirit. Although it's an hour and a half north and an hour long ferry ride (if you're lucky) to get to my beloved island, my heart's connection never waned. Like the love for my mother, or my father, who gave me life, San Juan Island grew her vines through my veins like little wild blackberries bearing fruitful memories. I am who I am because of our island.