I would like to apologize for being a huge baby. Just after the last post I thought about a friend from high school whose daughter has Diamond Blackfan Anemia. Mia, a seven year old, lives off of blood transfusions. She regularly has to get poked and prodded every 3-4 weeks. The most amazing thing about Mia is that she does it all with a smile, she's the cutest little curly head ever.
Here I am, a complete whiner, about such a trivial thing. An IV. Mia's big fear probably isn't the IV, it's having the blood to survive. During my last MRI, Danny went and donated blood just to feel close to me, even though technically he was across the entire hospital. Maybe THAT'S what I need to do, voluntarily get poked and donate my blood. I'm not sure if they'll take it. They might toss out brain tumor blood, but it's worth a shot to check it out.
I don't know why I was boo hooing. I'm embarrassed.
If you want to read Mia's story, and maybe donate to her website, please check it out: http://www.caringbridge.org/visit/miamcpoland/mystory
Dec 10, 2010
Dec 8, 2010
Speech Therapy Success
I'm happy to report that Monday's speech therapy was an unbelievable success. For the first time I was able to answer all four of the reading comprehension questions correctly! Here's the trick, I need to slowly read the passage aloud twice. And when I mean slowly, I mean s-l-o-w-l-y. Who cares though, it's a start! Woo hoo!
For next week, I have ANOTHER position/argument paper. This will be #4. Luckily, they're never long, just about 2-3 of a page. Each time I have a paper, Julie (my speech therapist) helps me hone in on organizing my thoughts. She's teaching me to use organization techniques, which I know I learned in high school (like idea bubbles), it's not enough to remember how to do a technique, it's all figuring out how to implement them. That's the hard part. I have such a hard time reaching into my brain and finding thoughts. It's weird. I think this part of my recovery is going to take quite a while.
Last night, just as I was falling asleep I had a mini panic attack. I realized the MRI is on January 14th and I remembered how horrible the IV is. I usually end up quietly sobbing. I'm a pretty big ninny. They can never find my vein so they end up digging around in my arm forever, changing puncture locations and veins, then they change arms, and then change back to the original arm. It sucks. I wish I could say that I can shove the thoughts out of my mind, but I can't. I'm trying my best, but until I replace the thoughts with something positive (and I can't seem to find anything that feels quite right) I'm going to be mulling over this for a little bit.
Anyway, all in all, things are going really well. I have two more speech therapy appointments to go in this session. Then, soon, on January 14th I have my next MRI. I'm feeling pretty confident that I'm doing everything I can to recover and be healthy. I'm sleeping 9-10 hours a night, resting as much as possible. I'm hitting this diet with a vengeance. I have yet to cheat or eat anything off my list of foods. I'm maintaining the lower calorie restrictions, and I'm still alive and kickin'. I'm cranky though. Maybe in a few more weeks (it's only been a week and a half) I'll stop craving sourdough bread, homemade cookies, red wine, and all of my other favorites. Small portions have always been my enemy, I'm a lover of food and I tend to go big or go home. Now, I'm trying to fight my desire to eat more. It's EXTREMELY tough. The only saving grace has been the 12lb weight loss. But truthfully, I'd give up the 12lbs if I could eat whatever I wanted. Sadly, this isn't about what I want, it's about surviving. It's my only real long term goal.
For next week, I have ANOTHER position/argument paper. This will be #4. Luckily, they're never long, just about 2-3 of a page. Each time I have a paper, Julie (my speech therapist) helps me hone in on organizing my thoughts. She's teaching me to use organization techniques, which I know I learned in high school (like idea bubbles), it's not enough to remember how to do a technique, it's all figuring out how to implement them. That's the hard part. I have such a hard time reaching into my brain and finding thoughts. It's weird. I think this part of my recovery is going to take quite a while.
Last night, just as I was falling asleep I had a mini panic attack. I realized the MRI is on January 14th and I remembered how horrible the IV is. I usually end up quietly sobbing. I'm a pretty big ninny. They can never find my vein so they end up digging around in my arm forever, changing puncture locations and veins, then they change arms, and then change back to the original arm. It sucks. I wish I could say that I can shove the thoughts out of my mind, but I can't. I'm trying my best, but until I replace the thoughts with something positive (and I can't seem to find anything that feels quite right) I'm going to be mulling over this for a little bit.
Anyway, all in all, things are going really well. I have two more speech therapy appointments to go in this session. Then, soon, on January 14th I have my next MRI. I'm feeling pretty confident that I'm doing everything I can to recover and be healthy. I'm sleeping 9-10 hours a night, resting as much as possible. I'm hitting this diet with a vengeance. I have yet to cheat or eat anything off my list of foods. I'm maintaining the lower calorie restrictions, and I'm still alive and kickin'. I'm cranky though. Maybe in a few more weeks (it's only been a week and a half) I'll stop craving sourdough bread, homemade cookies, red wine, and all of my other favorites. Small portions have always been my enemy, I'm a lover of food and I tend to go big or go home. Now, I'm trying to fight my desire to eat more. It's EXTREMELY tough. The only saving grace has been the 12lb weight loss. But truthfully, I'd give up the 12lbs if I could eat whatever I wanted. Sadly, this isn't about what I want, it's about surviving. It's my only real long term goal.
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