Showing posts with label Kings Market. Show all posts
Showing posts with label Kings Market. Show all posts

7.01.2014

1st Cherry Delivery (this year)

Thank you thank you thank you for buying cherries at Kings Market & Market Place!! You guys are so wonderful!! I love it when you comment about buying cherries, and the emails, and the text messages!! It's like you're sending me hugs, and it makes me feel incredibly special. If you take any photos, I'd love to add them to the blog!

We delivered on Saturday, and the whole trip was a blast. Hanging out with Dan is my favorite thing to do. He appreciates my rediculousness. We were stressed about missing the ferry (which we didn't) but spent the entire trip laughing. And a road trip to deliver cherries might be the best thing ever. It was so much fun! The best part was getting to thank everyone at both grocery stores. This is our third year of selling cherries, and it's a wonderful fundraiser. More than that, though, it's really fun to have something to provide, to not just ask for help. Usually my dad does the deliveries, since I can't drive, and it was nice for us to take over and accomplish what he normally does since he's away getting venom. 


I can't thank you guys enough for all of the support. I love doing the cherry sales, and I feel really fortunate that Kings and Market Place partnered with us to make this a reality. 

Thank you thank you thank you thank you!! :))))))....(that's my smiley face with a bunch of extra chins because I'm so happy).


6.26.2014

Cherries Are A Superfood!

I'm home, and although I tried getting back to bed this morning (at Dan's request) I can't help it but hit the ground running. My parents will be here in a few hours to spend the night, as they're flying out to get more venom tomorrow morning (man three months goes by so quickly!). My dad brought us his truck (thanks Aaron for the canopy!) so that on Friday after work, Dan and I will drive over to Wenatchee and spend the night at my parent's house. Because - for the first time - I get to pick up cherries from Stemilt and deliver a batch to Kings and Market Place in Friday Harbor. I am so excited to put faces to names, and say thank you, and give some hugs. Usually my dad, or my dad and his buddy Ron deliver cherries. The whole delivery is really quick, picking up at 7:00 am, driving to the ferry in Anacortes, taking the first ferry we can and then unloading at both grocery stores and then we're back on the next ferry off the island so that we can make it home and rest. Isn't it crazy how everything always bottlenecks? NYC, venom, cherries.

Cherry season is my favorite. They're so delicious! And really fun to eat. I mean, maybe not if you're really proper, but I'm more of a goofy tomboy who enjoys spitting the seeds. My mom has always called me G.I. Joe Barbie because I want to do what the boys do, but I like to do it with a dress, or a skirt, and now that I'm a little older, makeup. I like to be in the competition, in the mix. Now cherry season has gained even more significance. I get so excited for this fundraiser (which sneaked up on me). This year, instead of one big drop, we've divided it into three deliveries to Kings and Market Place in Friday Harbor. So to all of our Friday Harbor friends, when you're walking through the produce isle next week, and you have a hankering for cherries please know that I appreciate your support so very much!

Just yesterday I had to write the check for my shot and with the Euro so strong against the dollar it was over $5700. The treatments are stupid expensive, but surviving seems pretty smart, so whatever it takes I'm willing to do it. Also while at the doctor in NYC I discussed the sodium phenylbutyrate again. He said that it not only helps reduce glutamine/glutamate absorbtion which would slow tumor feeding, but also, the drug is a gene modifier. The problem? The market price is currently over $6000 a month. That's the actual cost of the product used in clinical trials. There is also a chemist's reproduction (you have to find a chemist pharmacy) which is not exactly the same as the drug, but very similar, essentially it's a knockoff. And it comes in at around $1200 a month. The third option is the supplement Butyrex which I own and have taken from time to time. But it's degradingly weak in comparison to the drug. So much so that it's probably a joke for what we're drying to do. There is one health insurance in the United States that will cover sodium phenylbutyrate for malignant gliomas, Aetna (technically it's an off label drug for urea cycle disorders). I do not have Aetna, but since I lost my insurance due to the Obama health care act (long story) and they bounced me down to Medicare, there could be a way when I renew in December to opt into Aetna for prescriptions. It will take until December to find out, but at least there might be a chance. As an aside, a while ago I spoke to the mother of a young woman who has taken sodium phenylbutyrate for around a year (or maybe it's two years by now) and she didn't have any real symptoms. Now, you might think I'm crazy that I'm talking about adding more treatments, but these tumors are invasive, and they morph and outsmart even the best cocktails. I mean, when you get a promotion, you don't just sit on your ass, it sparks you to keep the momentum going! This tumor is my career; I get paid in time. I don't want Hermie to come back. I refuse to be complacent. And if the additional treatment has a low risk profile, I don't see why not. Especially when we already know that IDH1 tumors, like mine, love them some glutamine/glutamate.

This brings me to a another fun rabbit hole I fell into while traveling. Are you guys familiar with methionine? I wasn't until I read THIS STUDY on the airplane last night. For those who don't want to read through the article, it's about dietary changes that you can make to prevent, and mitigate gliomas. One of the points was to focus on methionine restriction, which is an amino acid that is found in the heaviest doses in animal products.



Of course, then this morning, I had to know more. I started searching "methionine glioma", "methionine seizures", "low methionine foods", "methionine longevity". Each search result gave me more information, and more avenues to explore. Again I see that a vegan diet is best, but if you can't go strictly vegan, it would behoove all of us - especially cancer fighters - to cut back on animal products. Even the research with the ketogenic diet shows that it's not healthy unless it's restricted. A purely ketogenic diet is horrible for you. It irks me when I see articles and news reports touting the benefits of the ketogenic diet because they're missing the key point which is the restriction. The diet is actually mostly fat. Like 80% fat. So, of course you're eliminating a lot of glutamate/glutamine, glucose, methionine, etc. Heck, the restricted ketogenic diet is actually more like an elimination diet. You remove a lot of allergens. Anyway, not my point. The reading from last night and this morning reaffirms my choice to go heavy veggies, with an emphasis on superfoods (it really should be a one word term).

See - I can't help it, I start doing tumor research even when I'm supposed to be focusing on my seizure issues. The seizure issues are incredibly complex, almost too complicated to figure out. And the research about seizures is either very inconclusive or correlative but not necessarily causal. There's just so little we know about what causes seizures, or how to prevent them. Another horribly complicated riddle. I actually enjoyed researching methionine since there was clear information I could absorb and use. But for now, I'd better give my brain a break before it short circuits again. Also, thanks for all of the recent comments lately, I'll go through them soon!

6.25.2012

Organic Bing Cherry Fundraiser

Hi friends! This is awkward. I feel weird even talking about this fundraiser, and yet I'm incredibly grateful for it. It's tricky. I'm uncomfortable talking about money, then it's double-y awkward discussing a fundraiser to help me pay for my medical treatments. The silver lining is that I'm not asking for your money. Actually, that's not true - I AM asking for your money, technically, but you get something in return! You get delicious fresh organic bing cherries at an incredibly low price. So there you go, if you love cherries like I do, it's a win-win situation. Unless you eat too many at once...

This Thursday, June 28th, from 11:00-1:00 pm my parents will be selling organic bing cherries at Emma Schmitz Memorial Overlook (also known as Mee-Kwa-Mooks Park) in West Seattle. Just look for the maroon dodge truck with the maroon trailer. You will probably notice the large ORGANIC sign (Thank you Oehlerich family at the Copy Shop in Ellensbug!). After that, they're headed to Friday Harbor. On Friday and Saturday they will be selling right in front of the Roche Harbor Grocery Store from 11:00-4:00 pm. The organic cherries are priced at $4.66/lb and they're packaged in 1.5 lb bags for $7.00 apiece.


Thursday
West Seattle
11:00 am - 1:00 pm
Emma Schmitz Memorial Overlook (Mee-Kwa-Mooks Park)
4503 Beach Dr Sw, Seattle, WA 98116

Click on the map for directions





















Friday & Saturday
Roche Harbor
11:00 am - 4:00 pm
In front of Roche Harbor Grocery Store
(Just added the map for giggles...you islanders know where to go!)




The plan is to sell as many cherries as soon as possible. Way to state the obivious Jess, jeez. Anyway, if for some crazy reason we sell out we will close shop. Yep. I did it again. Obvious. Sorry, I'm just being awkward.

Thank you to anyone, in advance, for buying delicious cherries or for letting us set up shop. You are literally helping me stay alive and healthy. Both Danny and I, and of course my family, really appreciate it! I can not say enough how grateful I am.

Also, a massive thank you to Debbie Sandwith for letting us post up in front of the Roche Harbor Grocery Store this weekend!! Aaaaand, thank you to my buddy Libbey who connected us with the produce manager at Kings Market & Market Place for purchasing some fresh juicy organic bing cherries. So, whether you purchase your cherries out at Roche Harbor, or in town at Kings Market or Market Place you can feel great while satisfying your sweet tooth knowing that you've helped us tremendously.

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